tag:blogger.com,1999:blog-34074928089180252772024-03-13T03:05:31.666-05:00Welcome to Jeremy World The blog is about living life in "Jeremy World" with Jeremy.
It is a comical life, you can either laugh or cry but in all ways Seek the Lord Jesus Christ !!!! Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.comBlogger367125tag:blogger.com,1999:blog-3407492808918025277.post-26500475349442530732020-09-24T12:06:00.005-05:002020-09-24T12:20:34.769-05:00Joy Inexpressible and full of Glory !!!!! <p> </p><p class="MsoNormal">The way our year stated with Skunk Armageddon and Mollie
cat passing away shouldn’t had surprised me that March brought with it COVID…. (inset
Jaws theme here).<span style="mso-spacerun: yes;"> </span><o:p></o:p></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal">Jeremy started spring break on March 13.<span style="mso-spacerun: yes;"> </span>I show up for work on March 17 and was informed
to get what I needed and was labeled Safer working from home.<span style="mso-spacerun: yes;"> </span>I honestly in my mind thought this would last
a few weeks to a month but then the world shut down and brakes were applied to
life is exactly how I felt.<span style="mso-spacerun: yes;"> </span>Jeremy’s school
shut down, restaurants, church, only go out to get the essentials.<span style="mso-spacerun: yes;"> </span>Then Jeremy’s summer camp got cancelled, so my
summer vacation was cancelled.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span>I couldn’t visit families in the hospital and
had to start serving families a different way.<span style="mso-spacerun: yes;">
</span>I’m a social person so this was a TOUGH on me.<span style="mso-spacerun: yes;"> </span>I watched it from my bedroom window and we
lived life inside our house.<span style="mso-spacerun: yes;"> </span>I am
forever grateful that I could work from home and receive my full paycheck, all
of Jeremy’s home health nurses & HTS remained healthy and worked.<span style="mso-spacerun: yes;"> </span>I worked from home for 4 months, so when June
15 rolled around and it was time to return to the physical office I wanted to stay
home… (what???)<span style="mso-spacerun: yes;"> </span>I really did start to embrace
the slow-down, started food prepping, eating healthier, cooking more, not
eating out as much, even tried some vegan dishes but don’t get excited I LOVE
meat too much to give that up.<span style="mso-spacerun: yes;"> </span>The best
change I made was when Jeremy goes to bed at 8, I have a quiet time where I can
set and read my bible.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal">Jeremy graduated High School and had a formal graduation on June
26.<span style="mso-spacerun: yes;"> </span>Sapulpa Public schools did a great
job and had an amazing firework display for the seniors.<span style="mso-spacerun: yes;"> </span>Jeremy turned 21 on August 9, a day I have
been dreading for years because it means major change in services for him.<span style="mso-spacerun: yes;"> </span>I had to decide between keeping him on the In
home Support Wavier or switching to the Medically Fragile Waiver.<span style="mso-spacerun: yes;"> </span>It really wasn’t much of a decision just heart
wrenching to me as a single mom.<span style="mso-spacerun: yes;"> </span>Jeremy needs
nursing for his medical care, but that meant he lost his HTS who was his social
bridge into the community as well as my back up.<span style="mso-spacerun: yes;"> </span>Jeremy has only had 1 UTI this entire year,
he’s been extremely happy, healthy.<span style="mso-spacerun: yes;"> </span>His
repeat Upper GI, had me scared his stomach was still red & inflamed so I
was afraid the biopsies might not be in our favor and he now has an issue with his
stomach emptying.<span style="mso-spacerun: yes;"> </span>We’ve made some
changes to his eating and he’s doing really well.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal">I am Marley the cat, best friend ever, that cat loves me, she is loads of fun and fits right in.<span style="mso-spacerun: yes;">
</span><span style="mso-spacerun: yes;"> </span><o:p></o:p></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal">I did this thing, “OFFICIALLY” paid off my house mortgage
and grateful GOD blessed me with the resources to do that.<span style="mso-spacerun: yes;"> </span>I started out a single mom 11 years ago with incurred
debt and I’ve slowly dug myself out and the only payment I currently have is my
car... (inset happy dance) <span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal">I was excited to start a new woman’s bible study of 1 Peter with
the women at Grace Community Church…..<o:p></o:p></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal">1 Peter 1:8, “and though you have not seen him, you love
him, and though you do not see him now, but believe in him, you greatly rejoice
with joy inexpressible and full of glory”.<span style="mso-spacerun: yes;">
</span><o:p></o:p></p>Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-5358910910006119672020-06-04T09:49:00.002-05:002020-06-04T09:49:56.731-05:00So not Worthy !!!!!
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="background: white; color: black; font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";">I’ve been working on a post for
a while, I always try to figure out what path to take with a post. I
always pray because above all I want my words to do nothing short of glorify
GOD. A great bible study in 2 Timothy and an awesome morning drive this
morning and jamming to Michael W. Smith provided inspiration.</span><span style="font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";"><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";"><o:p> </o:p></span></div>
<br />
<div class="MsoNormal" style="background: white; margin: 0in 0in 0pt;">
<span style="background: white; color: #222222; font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";">So,
what has been happening in Jeremy World, including the crazy cat Mollie well we
added a Marley, an even more, extreme crazy cat. Jeremy has been
uneventful healthy, no sickness, no UTI and I’m so praising GOD for this.
We are gearing up for his graduation in May.<o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="background: white; margin: 0in 0in 0pt;">
<span style="font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";"><o:p> </o:p></span></div>
<br />
<div class="MsoNormal" style="background: white; margin: 0in 0in 0pt;">
<span style="background: white; color: black; font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";">Life
did get crazy but hey that is how we roll. Mollie ended up getting a rare
fungal disease and she can’t tolerate the treatment we tried 2 different
times. Mollie will eventually pass away or I will have to make the
decision to put her to sleep and it’s heartbreaking. I thought well maybe
get another cat to make that transition easier for Jeremy, so I started a semi-
not sure search for calico cats and up popped 1. This cat’s markings are
total opposite of Mollie. I went to meet her, long story short filled out
all the paperwork, paid my fee and while I was there this other lady came in to
adopt her. I honestly to be truthful at that point felt any day Mollie
was going to pass away or I was going to have to put her to sleep, she was just
that bad. I brought the new cat home on January 31 and we named her
Marley. So, we currently have Mollie & Marley and yes, it’s
confusing but Jeremy can say Mar Mar and it’s been a good thing for him, he
laughs at her like he did Mollie. Marley is still a little scared, except
with me I am her best friend ever, but she is warming up to everyone else, make
good progress in a month and is starting to sleep & be around Jeremy
some. Marley is very energetic, funny, full of life, and very expressive
loud. Marley has long legs & body, and her paws are big so I’m
expecting she will be a good size cat. Marley seems very content with her
new home.<o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="background: white; margin: 0in 0in 0pt;">
<span style="font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";"><o:p> </o:p></span></div>
<br />
<div class="MsoNormal" style="background: white; margin: 0in 0in 0pt;">
<span style="background: white; color: black; font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";">Then
“skunk Party 2020” yep early one morning getting ready for work, Jeremy getting
ready for school I hear a sound under my house and then a smell that will make
you gag. I walk into the living room and it was BAD. I had to hire
a company and they trapped 4 skunks that apparently had taken up resident, but
of course why wouldn’t they because they knocked my duct work loose, so they
had heat and a nice little pad. However, the duct work looked like a war
zone. The area is boarded up and duct work has been repaired,</span><span style="font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";"><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="background: white; margin: 0in 0in 0pt;">
<span style="background: white; color: black; font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";"><o:p> </o:p></span></div>
<br />
<div class="MsoNormal" style="background: white; margin: 0in 0in 0pt;">
<span style="background: white; color: black; font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";">I made
a commitment at the 1<sup><span style="font-size: x-small;">st</span></sup> of the year that I was going to attend a
women’s bible study on Tuesday nights @ Grace Community church, and it has been
a NEED in my life. We are studying through 2 Timothy. I enjoy
getting to know all the woman, church members and all my new friends. It
has all been so good, to keep my mind sharp for GOD, study the word, be in the
word, share the word.</span><span style="font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";"><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="background: white; margin: 0in 0in 0pt;">
<span style="background: white; color: #222222; font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";"><o:p> </o:p></span></div>
<br />
<div class="MsoNormal" style="background: white; margin: 0in 0in 0pt;">
<span style="background: white; color: #222222; font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";">This
morning a reflection on how much I don’t understand about life, my life, why
life turned out like it did. I’m graciously grateful that GOD is
Sovereign over us and that he washed away my sins. My personal scars,
battles, wars, whatever I may call them are not even in the same hemisphere of
what Christ endured on the cross, for me, the spotless, righteous lamb of GOD
who came to earth and lived a perfect, sinless life yet died as he did.
This is not because of me, I’m not worthy, will never be and deserve nothing
more than hell. I get impatient with how I feel things should be and I must
confess that sin to GOD. GOD the almighty, perfect, all knowing, and I
want to tell him what is best for my life. </span><span style="background: white; color: black; font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";">I stand before GOD guilty, nothing more I can say but Guilty,
but his mercy crashed in like the waves and all my sins are washed away, he
took them all, he took them all, without a trace and because of that I stand
free, with every stain, forever washed away. Spotless, whiter than snow,
your blood, Christ blood covers me and I’m whole. I’m graciously
grateful.</span><span style="font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";"><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="background: white; color: black; font-family: "Arial",sans-serif; mso-fareast-font-family: "Times New Roman";"><o:p> </o:p></span></div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-91394576314508688852019-11-21T10:42:00.001-06:002020-06-04T09:37:17.564-05:00An Amazing Season of Thanksgiving !!!! <br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";">We continue to live a glorious life here in Jeremy world,
along with the crazy cat Mollie.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";">I finally have a blog posting update of Jeremy World but first
Thanksgiving.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<o:p><span style="font-family: "calibri";"> </span></o:p><span style="font-family: "calibri";"><span style="font-family: "calibri";">I am forever and foremost graciously grateful & thankful
for God’s sovereign grace & mercy, I’m thankful that he sought me, saved me
from my wretched sinful soul that was not only <span style="mso-spacerun: yes;"> </span>destined to hell but I deserve hell.<span style="mso-spacerun: yes;"> </span>GOD is so patient & merciful with me and
I don’t deserve that.<span style="mso-spacerun: yes;"> </span>I’m graciously
grateful that GOD is above all, always been here, before time, above all other gods,
riches and he is the one true and only GOD.<span style="mso-spacerun: yes;">
</span><o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<o:p><span style="font-family: "calibri";"> </span></o:p><span style="font-family: "calibri";"><span style="font-family: "calibri";">I’m thankful for the parents GOD gave me and the glorious
time I had with them.<span style="mso-spacerun: yes;"> </span>I’m grateful for
their love & support.<span style="mso-spacerun: yes;"> </span>I’m grateful
for the valuable life lessons.<span style="mso-spacerun: yes;"> </span>I’m
grateful my mom was a true Proverbs 31 women and lived that out and I was able
to witness in her daily life.<span style="mso-spacerun: yes;"> </span>I’m
grateful my dad (whom I believe came to know God in his last hours) was tough
on me but it was because he loved me.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<o:p><span style="font-family: "calibri";"> </span></o:p><span style="font-family: "calibri";"><span style="font-family: "calibri";">I’m grateful and thankful for each of my 4 siblings, they
were my first friends, enemies but the love we have for each other can’t be
replaced.<span style="mso-spacerun: yes;"> </span>I’m grateful for their spouses.<span style="mso-spacerun: yes;"> </span>I’m grateful for my nieces and nephews.<span style="mso-spacerun: yes;"> </span>They have always shared so much with me.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";">I’m grateful that GOD chose me to be Jeremy’s mom, and has
given me 20 plus years to experience an undeserving love from such a tender
hearted boy, how Jeremy loves unconditionally and is always happy, most times
when he doesn’t feel good.<span style="mso-spacerun: yes;"> </span>I’m grateful
for his shenanigans and how they make me snicker. <o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";"><span style="mso-spacerun: yes;"> </span>I’m grateful for all
the amazing staff that cares for Jeremy, how they care for him and adopt us as
family.<span style="mso-spacerun: yes;"> </span>They are an extension of our
family.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<o:p><span style="font-family: "calibri";"> </span></o:p><span style="font-family: "calibri";"><span style="font-family: "calibri";">I’m grateful that I get to work at OGE, the friends I have
here, the benefits, my job financially supports my household.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";">I’m grateful I get to work for the Oklahoma Family Network
and provide support to so many families but how this supports my family. <o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";">I’m grateful for Sapulpa Bible Church, my church God provided
for me, they are extended family where the true, solid preaching of God’s word
is provided.<span style="mso-spacerun: yes;"> </span>The support and with happy
hearts GOD is served.<span style="mso-spacerun: yes;"> </span>I’m grateful for
the summer’s wicked weather because it brought Grace Community Church an entire
new church family into my life, many new amazing friends, who love and serve
GOD.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
</div>
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";">An Update into Jeremy World:<span style="mso-spacerun: yes;">
</span>We still have no genetic answer, still has low T-cells and the only
treatment would be a bone marrow transplant but Jeremy is not a candidate he
couldn’t tolerate the procedure.<span style="mso-spacerun: yes;">
</span>Jeremy’s spine did progress again this past year, which would explain
the increase in oxygen earlier this fall plus now leading to GI issues.<span style="mso-spacerun: yes;"> </span>I am grateful that Tulsa got an amazing new
Pediatric GI and that Dr. Michael Pickens was willing to take Jeremy on because
Jeremy isn’t considered Peds.<span style="mso-spacerun: yes;"> </span>Dr. Pickens,
listened to my concerns and immediately ordered test and wanted to know all he
could about Jeremy.<span style="mso-spacerun: yes;"> </span>We did an Upper GI
scope, barium enema and an Esphogram.<span style="mso-spacerun: yes;">
</span>Jeremy’s esophagus is slow, due do the curvature of his spine food goes
down slower, he has severe Gastritis, 9 biopsies were collected and all
confirmed acid reflux.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";">We have had a busy year. I was honored and thrilled to be present to welcome Dawson Gaches into
our family on January 15.<span style="mso-spacerun: yes;"> </span>He is my first
Great-nephew and mom and dad would have been proud Great- Grandparents.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<o:p><span style="font-family: "calibri";"></span></o:p><br />
<span style="font-family: "calibri";"><span style="font-family: "calibri";">I attended a Heartland Genetic Advocate meeting in Dallas
for a few days in February, a quick flight one day, conference, and late flight
back.<span style="mso-spacerun: yes;"> </span>I gained some new knowledge.<span style="mso-spacerun: yes;"> </span>I was so grateful to have the opportunity to
meet up with my friend Laurie Garza from Allen, Texas, she was the first parent
I met when Jeremy was diagnosed with FG syndrome and we’ve remained friends
through our boys growing up.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span><br />
<o:p><span style="font-family: "calibri";"> </span></o:p><br />
<span style="font-family: "calibri";">May I attended the Family Voices conference in Washington,
DC and that was an amazing conference.<span style="mso-spacerun: yes;"> </span>I
was pretty excited to be at our Nation’s Capital, see the White House,
Washington Monument, Lincoln Memorial, Arlington Cemetery, our Nation’s
Capital, supreme court, meet Senator Lankford.<span style="mso-spacerun: yes;">
</span>It was nice to be spend time with 3 of my co-workers with the Oklahoma
Family Network.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></span><br />
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";">Summer came and we took a vacation.<span style="mso-spacerun: yes;"> </span>I took Jeremy to his 5<sup><span style="font-size: x-small;">th</span></sup> year of
Camp Barnabas on Sunday, he loved it and would have returned.<span style="mso-spacerun: yes;"> </span>I then started my vacation with no agenda, no
planner and just got to be spontaneous.<span style="mso-spacerun: yes;">
</span>I flew to Jacksonville, FL to meet my friend Denise and we drove to
Savannah, GA to spend the week.<span style="mso-spacerun: yes;"> </span>It was a
great week, lots of interesting historical sites, some interesting places to
eat, seen a cannon being shot, climbed one of the 10<sup><span style="font-size: x-small;">th</span></sup> tallest
Lighthouses at Tybee Island and we even drove around Bonaventure Cemetery.<span style="mso-spacerun: yes;"> </span>There was much time to relax, talk, I got to
do my bible study every evening with no interruptions, got some rest and just
an amazing week.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
I will end with a verse from <em><strong>1 Corinthians 10:31, " Whether, then you eat or drink or whatever you do, do all for the Glory of God". This is what I am striving to do in my life with all I do.</strong></em> I'm grateful that my Pastor has been teaching through 1 Corinthians. Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-46636530572056050012018-10-26T12:26:00.001-05:002018-10-26T12:26:50.607-05:00My Feet are on the Rock !!!
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">We were so excited to start September off with welcoming, my
niece, Jeremy’s cousin, Brandi back to the USA after faithfully serving our God
over in Brazil for the past several years.<span style="mso-spacerun: yes;">
</span>We have all missed her so much and so excited to have her back here with
us.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<span style="font-family: Calibri;"></span><br />
<span style="font-family: Calibri;">My little mystery minion continues
down that path.<span style="mso-spacerun: yes;"> </span>I notice when we got
home from the airport that day he was tired, not really eating and starting to
have some desaturations and a sporadic rash.<span style="mso-spacerun: yes;">
</span>We see the doctor the next day, did some blood work but nothing came
up.<span style="mso-spacerun: yes;"> </span>He started that Thursday having major
desaturations down into the 70’s, his school was amazing and worked to get him
above 90 although he required more oxygen.<span style="mso-spacerun: yes;">
</span>I had a conversation with Dr. Walters.<span style="mso-spacerun: yes;">
</span>We went that afternoon to see our new Neurologist, Dr. Hussain and we
love him he was very informative and listened to my concerns.<span style="mso-spacerun: yes;"> </span><span style="mso-tab-count: 1;"> </span>The
next day I have to admit I was preparing myself for a similar situation.<span style="mso-spacerun: yes;"> </span>As a mom I felt something wasn’t right with
Jeremy, just could pinpoint what was going on.<span style="mso-spacerun: yes;">
</span>I start getting text right away about oxygen desaturations, turning him
up.<span style="mso-spacerun: yes;"> </span>Then he’s down to 63, we are calling
EMSA.<span style="mso-spacerun: yes;"> </span>I rush to school, calling doctor
on the way to inform and receive a phone call asking me where I was they were
going to transport him, I instructed to take him to St. Francis and I would
follow but I was almost at the school.<span style="mso-spacerun: yes;">
</span>Then nothing prepares you for the scene of driving into the school
parking to see EMSA and fire truck with lights knowing they are there for your
son, you run in and no one will look you in the eye and you are not sure
exactly how to expect to see your son.<span style="mso-spacerun: yes;">
</span>He was starting to come around and acting like himself so I took him to
the ER, we didn’t get any answers but did have instructions to keep him on more
oxygen and all test were coming back normal.<span style="mso-spacerun: yes;">
</span>The rest of that month and next was a barrage of doctor appointments,
blood work, tests and eventually a nasty UTI.<span style="mso-spacerun: yes;">
</span>Jeremy still continues to have low T- Cells, and it seems that the only
bacteria he grows for an UTI is the nasty klebsiella pneumoniae.<span style="mso-spacerun: yes;"> </span>We aren’t sure at this point why Jeremy is
requiring more oxygen but he does.<span style="mso-spacerun: yes;"> </span>We
will be repeating a sleep study end of December to check all of that.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span><br />
<span style="font-family: Calibri;"></span><br />
<span style="font-family: Calibri;">We are enjoying fall, the weather
has been amazing, we have all of our Halloween decorations out and ready for
Halloween this week to hand out candy hopefully we will have some trick or
treaters.<span style="mso-spacerun: yes;"> </span>Jeremy is doing well, very
ornery, becoming verbal and the minion cat is spoiled and continues that
pathway.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span><br />
<span style="font-family: Calibri;"></span><br />
<span style="font-family: Calibri;">I am
loving the song, “My feet are on the rock” by I am They.<span style="mso-spacerun: yes;"> </span>It seems to represent my life as I know many
others right now.<span style="mso-spacerun: yes;"> </span>I see the clouds,
winds roll in, waters rise, feel like I’m drowning.<span style="mso-spacerun: yes;"> </span>I refuse to give Fear a foot hold.<span style="mso-spacerun: yes;"> </span>I see joy, I see the joy because my faith is
planted in Christ alone and his unchanging grace, he doesn’t change, he can’t
change, GOD is GOD always and forever.<span style="mso-spacerun: yes;">
</span><o:p></o:p></span><br />
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<o:p><span style="font-family: Calibri;"> </span></o:p></div>
<span lang="EN" style="mso-ansi-language: EN; mso-ascii-font-family: Calibri; mso-bidi-font-family: Calibri; mso-fareast-font-family: "Times New Roman"; mso-hansi-font-family: Calibri;"><span style="font-family: Calibri;">I can see the clouds roll in<br />
And I can feel the wind as they try to shake me<br />
I will not be moved<br />
My feet are on the Rock<br />
<br />
I can feel the waters rise<br />
And I can hear the howling lies that haunt me<br />
Fear won't hold me now<br />
My feet are on the Rock<br />
<br />
I can see the morning light<br />
I can feel the joy on the horizon<br />
Here my faith is found<br />
I stand in solid ground!...<br />
<br />
When I feel my hope about to break<br />
I will cling to Your unchanging grace<br />
Let the waters come and the earth give way<br />
I'll be dancing in the rain!<br />
My feet are on the Rock<br style="mso-special-character: line-break;" />
<!--[if !supportLineBreakNewLine]--><br style="mso-special-character: line-break;" />
<!--[endif]--><span style="font-family: Calibri;"><span lang="EN" style="mso-ansi-language: EN; mso-ascii-font-family: Calibri; mso-bidi-font-family: Calibri; mso-fareast-font-family: "Times New Roman"; mso-hansi-font-family: Calibri;">On Christ the solid Rock I
stand<br />
All other ground is sinking sand<br />
So stomp your feet and clap your hands<br />
Our feet are on the Rock<br style="mso-special-character: line-break;" />
<!--[if !supportLineBreakNewLine]--><br style="mso-special-character: line-break;" />
<!--[endif]--></span><o:p></o:p></span></span></span><br />
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-16654736582380482462018-06-29T14:15:00.001-05:002018-06-29T14:15:55.147-05:00I trust GOD, not the Journey !!!!!!!<br />
<div class="MsoNormal" style="text-indent: .5in;">
<a href="https://www.blogger.com/null" name="_MailOriginal">I think one day this may be the introduction to my book. </a></div>
<div class="MsoNormal" style="text-indent: .5in;">
<a href="https://www.blogger.com/null" name="_MailOriginal">There have
been many times in Jeremy’s life that have hurt me to the core to the point
that I felt like the breath was knocked out of me and all I could say was I
can’t do this, GOD fix it.<span style="mso-spacerun: yes;"> </span>When Jeremy
was born with multiple medical needs and required brain surgery the 2<sup>nd</sup>
day of his life, the 11 day NICU stay, test after test, diagnose after
diagnose.<span style="mso-spacerun: yes;"> </span>I viewed this as unfair
because I DIDN’T deserve it (believe me I cringe at this statement) I deserved
a child that was perfectly healthy, I deserved better, he deserved better.<span style="mso-spacerun: yes;"> </span>I grew up with the thought process that everything
happens for a reason, so what did I do?<span style="mso-spacerun: yes;"> </span>What
is the reason? <span style="mso-spacerun: yes;"> </span>Why did it happen?<span style="mso-spacerun: yes;"> </span>Because so many times in our Christian life
what do we do? We hand out pieces of advice based on a partial piece of a
scripture that we can take and fit it into our little box we call life because
it makes us feel good.<span style="mso-spacerun: yes;"> </span>We don’t read the
before and after scripture or even study the context.<span style="mso-spacerun: yes;"> </span>I’m guilty of doing this more times than I
can even remember, and I’ve had to repent of that.<span style="mso-spacerun: yes;"> </span>What does Ecclesiastes Chapter 3 tell us,
basically there is a time for everything, so there must be a time for healing<span style="color: #1f497d;">, </span>because everything happens for a reason because
Romans 8:28 tells us what? What else do we often do as Christians, we
make everything about us, my hurt, my healing, my heart, my suffering.
Jeremy didn’t deserve to require spinal surgery that would rock his entire core
system, take away his mobility the one thing he dearly loved and long-term affect
his health. I cried out to God to many times, heal him, let him walk
again, this isn’t fair and we don’t deserve it. Then that day, that
moment (there has been many) that GOD would speak to my heart as if to say, “Lora,
Jeremy is fine he doesn’t need to be healed, but YOUR HEART, YOUR HEART needs
to be healed” <span style="mso-spacerun: yes;"> </span>OUCH !!!!! <span style="color: #1f497d;"><span style="mso-spacerun: yes;"> </span></span>I had devoted
so much to what is the plan, when will GOD reveal this plan to me, there is a
reason, right GOD?<span style="mso-spacerun: yes;"> </span>Has if I, I had any
right to question GOD. The GOD who spoke this entire world into existence
with no effort, the GOD who created me & Jeremy for him.<span style="mso-spacerun: yes;"> </span>This is God’s word from the beginning to the
end.<span style="mso-spacerun: yes;"> </span>God had a plan to prevent me from
dying and spending eternity separated from him in a place called Hell, so one day
because I have put my faith in Christ alone, I GET TO LIVE in his glory, I GET
TO LIVE IN HIS GLORY. <o:p></o:p></a></div>
<div class="MsoNormal">
<span style="mso-bookmark: _MailOriginal;">
My sister’s church was doing a fundraiser for their mission trip to Brazil and
has a girl making signs.<span style="mso-spacerun: yes;"> </span>I started last
year in December when Jeremy was so sick and hospitalized twice, had surgery
for cellulitis.<span style="mso-spacerun: yes;"> </span>Reading the Proverbs and
created me a little quote, “I don’t trust the Journey but the GOD who
determines my journey”. Proverbs 3:5-6, Trust in the Lord with all your
heart and do not lean on your own understanding. In all ways acknowledge
him and he will make straight your path. Did I really trust GOD or was I
trusting the journey and just making it threw.<span style="mso-spacerun: yes;">
</span>Then a short month later GOD brought me down to my knees quickly the
day, mom passed away suddenly, I truly believe she passed away instantly,
before I even laid her back in the seat or did any CPR.<span style="mso-spacerun: yes;"> </span>Then Jeremy got so sick once again, and there
have been many times in his life that I wasn’t sure if I would be bringing my
boy back home with me or would he survive this, this day was one.<span style="mso-spacerun: yes;"> </span>The day we got to the ER and his leg started
bleeding through open wounds because his leg was so infected with MRSA and he
honestly could have went septic at any time.<span style="mso-spacerun: yes;">
</span> <o:p></o:p></span></div>
<div class="MsoNormal" style="text-indent: .5in;">
<span style="mso-bookmark: _MailOriginal;">My
sister sent me this picture last night telling me my sign was ready and BAM, I
have found my title and book cover for my book.<span style="mso-spacerun: yes;">
</span>I still got to get busy to put all the thoughts, postings together.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<div class="MsoNormal" style="text-indent: .5in;">
<span style="mso-bookmark: _MailOriginal;">We had some exciting news, my nephew Joseph got married to his best friend of over 3 years, Tarron beautiful wedding. They found out they are expecting the end of January and I am so freaking excited to be a Great Aunt, and know that I will ROCK it. </span></div>
<div class="MsoNormal" style="text-indent: .5in;">
<span style="mso-bookmark: _MailOriginal;">Jeremy
still battles UTI like a roller coaster so we started a new plan and went up a
size in cathears so hopefully that will help ensure his bladder is empty, he
ended up with a sinus infection we discovered that on the brain MRI to check
for any changes in his brain which nothing new there.<span style="mso-spacerun: yes;"> </span>We discovered he has acid reflux so we are
treating that. <span style="mso-spacerun: yes;"> I finally have all the carpet out of our house, Jeremy's room was the last one. </span>Jeremy’s Neurologist who
we’ve had since he was 6 weeks old retired, Dr. G. Steve Miller so we have an
appointment with a new one in September.<span style="mso-spacerun: yes;">
</span>Jeremy went to Camp Barnabas for the 4<sup>th</sup> year and had an
amazing time, met many new friends.<span style="mso-spacerun: yes;"> </span>He
has readjusted back to Jeremy World, he is happy, feeling good and we are just
going to enjoy the rest of summer.<span style="mso-spacerun: yes;"> </span>I
boarded a plane to Detroit, Michigan on Monday with Kristy, a good friend.<span style="mso-spacerun: yes;"> </span>We had a blast, rented a car and drove to
Port Huron, Michigan.<span style="mso-spacerun: yes;"> </span>I was asked, “why
did I pick that place”, well I have never been to Michigan and it was
absolutely 100% gorgeous, the Lake Huron is so beautiful blue and the weather
was cool, breezy 76 degrees.<span style="mso-spacerun: yes;"> </span>Molly the
cat was happy that her humans returned home, although my nephew stayed with so
she wouldn’t be alone.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<div class="MsoNormal" style="text-indent: .5in;">
<span style="mso-bookmark: _MailOriginal;">Enjoy
the pictures…<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj8UtdD6jyhvFF-JSpVmAVRsUMeUxuJOS92SHe3HrLfvg7uVANfsS8dPQGcJNPiKtQbFPj_UwNjp0pMVSSfQIqblkg8NA9csDCu8NWCyYNNg2WqWNyF_KlcjPzce1RyZRcnfX98fCSeEnXL/s1600/32294250_10210694889839911_8073609420564594688_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj8UtdD6jyhvFF-JSpVmAVRsUMeUxuJOS92SHe3HrLfvg7uVANfsS8dPQGcJNPiKtQbFPj_UwNjp0pMVSSfQIqblkg8NA9csDCu8NWCyYNNg2WqWNyF_KlcjPzce1RyZRcnfX98fCSeEnXL/s200/32294250_10210694889839911_8073609420564594688_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Sat. morning with a friend </td></tr>
</tbody></table>
</span></div>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzrjjvYio8h_ckBktlqIZ-yLnphHNojQFOcIBUUTl9yIKderNCh9RETZHc1QpRdDQBam0mv7CbwiHu_cA3z1lvQ7xuzbfP2XZCD6JJBmkeXMYI_pjOzC9CHJEmu1YepPlQeLJIcaQU0Aav/s1600/32506953_10210706480569672_6390638133578301440_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzrjjvYio8h_ckBktlqIZ-yLnphHNojQFOcIBUUTl9yIKderNCh9RETZHc1QpRdDQBam0mv7CbwiHu_cA3z1lvQ7xuzbfP2XZCD6JJBmkeXMYI_pjOzC9CHJEmu1YepPlQeLJIcaQU0Aav/s200/32506953_10210706480569672_6390638133578301440_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jeremy w/ Dr. Miller, we loved him </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvw189hEXl861BYUdC73dP2sLRd0KSU_eKeu2QupOlvRw3vGCf6A1wmgEsTJt7_1solKFWV8ZVc3m7gbtcHubL1IQQPOl0BQdAyT5syaN6Y0O2VYlJlRkSk2Tpk6kjm1WS1SMgqRAL5gHY/s1600/34030200_10210799450973874_3875285661888020480_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvw189hEXl861BYUdC73dP2sLRd0KSU_eKeu2QupOlvRw3vGCf6A1wmgEsTJt7_1solKFWV8ZVc3m7gbtcHubL1IQQPOl0BQdAyT5syaN6Y0O2VYlJlRkSk2Tpk6kjm1WS1SMgqRAL5gHY/s200/34030200_10210799450973874_3875285661888020480_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">His favorite thing eat out with staff </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrUUF_2baU6e3xryTY75liGVgbnjkqpkEhNsBsEgaSdiU3vKHn2C47hTLiRgOrAnbXXQwSu_MAxF6e_rpYaPKi3l7M8TXJcjgnEs7PdwoCfQ12o8NMj5oXJr7pTexkAHSLILNEft5T_xUl/s1600/34532235_10210837780252082_5830754627892543488_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="640" data-original-width="960" height="133" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrUUF_2baU6e3xryTY75liGVgbnjkqpkEhNsBsEgaSdiU3vKHn2C47hTLiRgOrAnbXXQwSu_MAxF6e_rpYaPKi3l7M8TXJcjgnEs7PdwoCfQ12o8NMj5oXJr7pTexkAHSLILNEft5T_xUl/s200/34532235_10210837780252082_5830754627892543488_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">So many great pictures, but this was one of my favorites</td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvXtscykQB5_pFNulrvaWlvvAhr78G5O5WTeIpmrDnDqew5w8TbuPqWW_tthfJUNPK1Fm8uxoljOYwem8YdQc1hlIKjWCLt9xtiq0wnCa6UELhTBAEa5Q4HBBzbyYTYgeZLc-Pm6JCmGe5/s1600/34822104_10210853158556530_8344723570357698560_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvXtscykQB5_pFNulrvaWlvvAhr78G5O5WTeIpmrDnDqew5w8TbuPqWW_tthfJUNPK1Fm8uxoljOYwem8YdQc1hlIKjWCLt9xtiq0wnCa6UELhTBAEa5Q4HBBzbyYTYgeZLc-Pm6JCmGe5/s200/34822104_10210853158556530_8344723570357698560_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The lazy cat </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9yw-4zAPOWBAghfYj5gph8iwbGnD7CZiOyC_0XvogfrFRlqLxyCjiCmqczrhHa-tZBUPbua24Lczco7iyeZbjH09fLA1Haf_RrpDitxHEWhQRr9_ehW8JAQmom-PaZD4Tc-S3sBjPuywU/s1600/35026537_10210865831993358_7240007185248288768_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="720" data-original-width="960" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9yw-4zAPOWBAghfYj5gph8iwbGnD7CZiOyC_0XvogfrFRlqLxyCjiCmqczrhHa-tZBUPbua24Lczco7iyeZbjH09fLA1Haf_RrpDitxHEWhQRr9_ehW8JAQmom-PaZD4Tc-S3sBjPuywU/s200/35026537_10210865831993358_7240007185248288768_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Loved watching the Freighters come in </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNb8SV4gERYjCpQR21O8wSvhZl2LnYsfDQZkm3ermzP7vq6o0FgdOAfdj6suWXScPoL4fWXXUxp7Y1nXXBzfhT-04Ab-4ay__O4JFWWM_oNd-eUo4RLmn7lGPe3XzwF4Swwm-B169PxaiJ/s1600/35051497_10210865827513246_5740576330609590272_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNb8SV4gERYjCpQR21O8wSvhZl2LnYsfDQZkm3ermzP7vq6o0FgdOAfdj6suWXScPoL4fWXXUxp7Y1nXXBzfhT-04Ab-4ay__O4JFWWM_oNd-eUo4RLmn7lGPe3XzwF4Swwm-B169PxaiJ/s200/35051497_10210865827513246_5740576330609590272_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The amazing bluest water I've ever seen </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1dgUApXPlnzHHmQqr1DEgk-ChR2ZXUaXQnc1nk8XYIYmPkGqE0LIpFJ-XW6kjiVLm-2G1IJ_NT2IarwrZl-bhhhvRS7ZZSO3kCCZhDQOBHvtNGtbt6YiwiaABbFV20kJHovPawDpHWppC/s1600/35193481_10210865828193263_8104126331433779200_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1dgUApXPlnzHHmQqr1DEgk-ChR2ZXUaXQnc1nk8XYIYmPkGqE0LIpFJ-XW6kjiVLm-2G1IJ_NT2IarwrZl-bhhhvRS7ZZSO3kCCZhDQOBHvtNGtbt6YiwiaABbFV20kJHovPawDpHWppC/s200/35193481_10210865828193263_8104126331433779200_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Vacation 2018 </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcCiuPuz-qH0ZKjAPU0nUNacadJ8Gb7sXZDlhYJegn1VOnignXdL9G7AV1lTgyJeNT1xJfhb46CwXzkzLJX-P6JDhQ5IVVNTL118-Rwl9J1_aptWFnDAqH5TvKlUd0wWN8scRsoxWgUHqv/s1600/35287255_10210875376071954_3694356286188552192_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcCiuPuz-qH0ZKjAPU0nUNacadJ8Gb7sXZDlhYJegn1VOnignXdL9G7AV1lTgyJeNT1xJfhb46CwXzkzLJX-P6JDhQ5IVVNTL118-Rwl9J1_aptWFnDAqH5TvKlUd0wWN8scRsoxWgUHqv/s200/35287255_10210875376071954_3694356286188552192_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Ft. Graiot Lightehouse, we climbed 94 steps </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBl6nqS4_YkUcfE_x8Kn_GtPyysUsneEvl9gnH-dWuYQxkRczpBChiWSzRdPCZ1-4dSLQrpyF_tyXd7zC8vEbD-ddIHQJKaio1rvWO4Yl0tgKOjoUkM-tenaGTJVCdxNTZ_snjISTXedKU/s1600/35427464_10210895244048641_3798049952198819840_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="640" data-original-width="960" height="133" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBl6nqS4_YkUcfE_x8Kn_GtPyysUsneEvl9gnH-dWuYQxkRczpBChiWSzRdPCZ1-4dSLQrpyF_tyXd7zC8vEbD-ddIHQJKaio1rvWO4Yl0tgKOjoUkM-tenaGTJVCdxNTZ_snjISTXedKU/s200/35427464_10210895244048641_3798049952198819840_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Of course </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpLGhV2a2rc734tYeJ_Kh_h6omTO_ys0teWpeh0sweoe7Nnesm8seQOU-elAxtcZE685Id5ZjUSUzmvQ5xjrkA98sjCrrk2V_ckChIVV4UM6ls_q1pWjDqYcyj3e8lV80WH5rTJLCGtQMI/s1600/35779234_10210918973121853_3870787727322513408_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpLGhV2a2rc734tYeJ_Kh_h6omTO_ys0teWpeh0sweoe7Nnesm8seQOU-elAxtcZE685Id5ZjUSUzmvQ5xjrkA98sjCrrk2V_ckChIVV4UM6ls_q1pWjDqYcyj3e8lV80WH5rTJLCGtQMI/s200/35779234_10210918973121853_3870787727322513408_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Not sure, he's just goofy </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjeK7I-nKhuG5Xyd7oTZs5gOxT_Del8D4HVxhzvP18z2sa3mWUvwSAE0qYKzHhP-nTkBgnfwZnuSzclQzGTIdPBXU34qRw-J7EoZ_JMe7zANBJoBXPzGlQEKmJMNsQBRO8Hy5xyrwzKA0PA/s1600/35850825_10210918972321833_2722361876653539328_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="890" data-original-width="414" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjeK7I-nKhuG5Xyd7oTZs5gOxT_Del8D4HVxhzvP18z2sa3mWUvwSAE0qYKzHhP-nTkBgnfwZnuSzclQzGTIdPBXU34qRw-J7EoZ_JMe7zANBJoBXPzGlQEKmJMNsQBRO8Hy5xyrwzKA0PA/s320/35850825_10210918972321833_2722361876653539328_n.jpg" width="148" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Such fun </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwaL__EuECW6Nutp-RnIiluM2tLxke7MVh2W-kl7NnXxsOewatfxH5YObo01pzxosU_eisQvFPSVhJ7XBERKeAVscflrcMkAgTWS1R0jTwnlL6bVJynfo7l-bcL1m9Yn4W75eHtFA-xJ6t/s1600/35884101_10210918973601865_4377329190890897408_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="720" data-original-width="960" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwaL__EuECW6Nutp-RnIiluM2tLxke7MVh2W-kl7NnXxsOewatfxH5YObo01pzxosU_eisQvFPSVhJ7XBERKeAVscflrcMkAgTWS1R0jTwnlL6bVJynfo7l-bcL1m9Yn4W75eHtFA-xJ6t/s200/35884101_10210918973601865_4377329190890897408_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">New Friends from Eagle Heights Baptist Ministry<br /></td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7RylNy7swQCCdkB5XGSmqLh_nmi9omjkPPefRCBCEaojz_wu5MGSGG5fS2OWb5YFvrELveHFs7jGaI_CtcIARBQvIMn31hALatTjityXjIaD4Y1EFCndlAQazP2tpmIix46Bsgx1C46e_/s1600/34674976_10210843489074799_1209623525409685504_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="720" data-original-width="960" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7RylNy7swQCCdkB5XGSmqLh_nmi9omjkPPefRCBCEaojz_wu5MGSGG5fS2OWb5YFvrELveHFs7jGaI_CtcIARBQvIMn31hALatTjityXjIaD4Y1EFCndlAQazP2tpmIix46Bsgx1C46e_/s200/34674976_10210843489074799_1209623525409685504_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The Famous book cover !!!!</td></tr>
</tbody></table>
<o:p></o:p><br />
<br />Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-43788107686698282852017-11-10T11:56:00.004-06:002017-11-10T11:56:50.183-06:00The freedom of summer <div class="MsoNormal">
I have
been working on this update for several months which is the norm for me. The thought still remains in my heart to one
day write a book/books to be inspirational faith based or possible children’s
books. will be a series of children’s
books. For the time being there is not
enough time to pursue this avenue. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal" style="text-indent: .5in;">
I found a previous post about
warning alarm because like so many mornings I am woke up from a deep sleep with
my security alarm blaring because my son will drop something and my alarm picks
it up as a window break. The alarm is to
warn me if someone is trying to get into my house. I started to notice road construction and the
warnings that go with it, especially traveling on I-44, you see, “road
construction ahead” and then “left lane ends in 1 mile” and the final flashing
lights “merge now” yet so many drivers push that to the limits. We see warning signs put in place to protect
us, GOD has given us warning signs but yet we often push it to the limit. This has been my heart and realize I need to
make more effort to pray for our leaders and cry out to God and turn from my
sins. 2 Chronicles 7:14, “and my people
who are called by my name humble themselves and pray and seek my face and turn
from their wicked ways, then I will hear heaven, will forgive their sin and
heal their land” <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal" style="text-indent: .5in;">
We started a new era as Jeremy
turned 18 in August. Where did the time
go? because I’m pretty sure he was just born.
It has been a little crazy with all the hoop jumping. I went through the process and obtained
guardianship, that was a fairly easy process.
I do however stand my ground and feel it’s crazy as his mom for the past
18 years to pay a lawyer and petition the courts to retain that right. But it is done. I filed for SSI the day after he turned 18
and that has been a hassle, but I am finally his representative payee and we
are on that journey. We experienced our
first hiccup with medical, we went to the ER and was shuffled over to the adult
ER. I thought I would have an anxiety
attack or need bail money and I wasn’t prepared for that. It turned out not to be so bad, although eye
opening. I feel the doctors should have
listened to my expertise more and we will get there. Our nurse was so amazing and helped the
entire process. I’ve been talking about
a family advisory council for the adult hospital and gears are turning to get
that started. <o:p></o:p></div>
<div class="MsoNormal" style="text-indent: .5in;">
<br /></div>
<div class="MsoNormal" style="text-indent: .5in;">
Jeremy had an amazing summer, he
was so happy, had fun, rested, full of energy and healthy. He attended Camp Barnabas again for the 3<sup>rd</sup>
summer and had a blast. I was grateful
that Kristy could take Jeremy to camp for me so I could board a plane to Jacksonville,
FL. This was my first vacation that was
just vacation, a week of nothing to do with medical, no conference just fun in
the sun. I spent the week with a friend,
going to the ocean, all the amazing wonders of GOD and relaxing. We both enjoyed our week of fun but was glad
to be reunited and back home. Mollie the
cat however, was in mourning for most the week, but was grateful to a friend,
Misty who came by to check on her, keep her fed and watered and attention. <o:p></o:p></div>
<div class="MsoNormal" style="text-indent: .5in;">
<br /></div>
<br />
<div class="MsoNormal" style="text-indent: .5in;">
Jeremy managed to go 4 months with
no antibiotic but end of summer developed an ear infection and then, strep
throat and UTI. We got some results back
from the Immunologist and Jeremy has low T- cell Lymphocytes so he can’t fight
a viral infections. We are waiting for
one more test results to come back to see if this is genetic and where do we go
from here. I have to say that news took
me back. I have seen Jeremy regress over
the past 4 years, motor and definitely in immunity. He woke up one Saturday morning with a little
pimple on his right elbow opposite side of the horror cellulitis infections
last year. I used all the education I
had learned on skin infections from Dr. Martin, our amazing infectious disease
doctor. He started running a fever and
by early Sunday morning high fever, the pimple was gone, but the area was red,
warm to the touch so off to the ER we went.
I think the quick notice of this, slowing it down & getting treated
definitely getting him on the right antibiotic prevented it from getting
worse. </div>
<div class="MsoNormal" style="text-indent: .5in;">
<br /></div>
<div class="MsoNormal" style="text-indent: .5in;">
I then got to take a fall trip with my best friend, Kelly Hamilton to Seattle Washington it was so beautiful with so many amazing sights. <o:p></o:p></div>
<div class="MsoNormal" style="text-indent: .5in;">
<br /></div>
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrMPLotwviUDRa6GxdNXpxAQCfIARVx_yTYyUKRAJpFrAF3-rSr3HtyB4tUvkJ5rDWIRHGB7HZcfAyUcWxeM3C0q-EdCrxPHZvlIpt_q4GeCJiDmFMY47UdrrZasFjnbt_ozXn_DF3rPYU/s1600/18557131_10208253853695533_8293355643720606867_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrMPLotwviUDRa6GxdNXpxAQCfIARVx_yTYyUKRAJpFrAF3-rSr3HtyB4tUvkJ5rDWIRHGB7HZcfAyUcWxeM3C0q-EdCrxPHZvlIpt_q4GeCJiDmFMY47UdrrZasFjnbt_ozXn_DF3rPYU/s200/18557131_10208253853695533_8293355643720606867_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Sat morning trip to WalMart with Kristy<br /></td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiiY41LNe0xu2VKNYsMgYh_Iq0cSrRZfcVo3IBcesw0EsjOvzuiuG8R96FQ3oy0aylW6h3sc_4_Wxk7HtSULJeD0QWVPlZyLpV7ciipkrtrKLwgHgYBxLwAwJ_EZCSjbNoo0WGMneAR2oTD/s1600/18813739_10208394700296610_7529184554576220678_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="720" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiiY41LNe0xu2VKNYsMgYh_Iq0cSrRZfcVo3IBcesw0EsjOvzuiuG8R96FQ3oy0aylW6h3sc_4_Wxk7HtSULJeD0QWVPlZyLpV7ciipkrtrKLwgHgYBxLwAwJ_EZCSjbNoo0WGMneAR2oTD/s200/18813739_10208394700296610_7529184554576220678_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Going on a trip </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKaWapiAq1eouBjPVVllaFi6qb_pXjG5SvK5-aiZ0rktl27VrxSAfx098kJ-015_E_QyamHRsbRE1vvpo8HCFLDQFNYI6jquaFgTLrh-ip4zXaaz3prhaf-0Pq4FLgi9Krumxml03EljHu/s1600/19657033_10208638563953049_6291198093147834916_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="858" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKaWapiAq1eouBjPVVllaFi6qb_pXjG5SvK5-aiZ0rktl27VrxSAfx098kJ-015_E_QyamHRsbRE1vvpo8HCFLDQFNYI6jquaFgTLrh-ip4zXaaz3prhaf-0Pq4FLgi9Krumxml03EljHu/s200/19657033_10208638563953049_6291198093147834916_n.jpg" width="178" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He just got his new glasses, isn't he handsome? </td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxY-k5Fb5VPQ94mEgvw7n7fh1tm_gl25Cbpbqe-gXIytxq5sKDg_h4GlC18lB4Y1P-xvEl8-NDwbwsqUJQte3_WqnD7m0JqmjIm13icYPbztA2pvhH3uKB28xJo8hXaTe8SDaeXCEzUaix/s1600/20374644_10208858274445674_5820839570229551222_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxY-k5Fb5VPQ94mEgvw7n7fh1tm_gl25Cbpbqe-gXIytxq5sKDg_h4GlC18lB4Y1P-xvEl8-NDwbwsqUJQte3_WqnD7m0JqmjIm13icYPbztA2pvhH3uKB28xJo8hXaTe8SDaeXCEzUaix/s200/20374644_10208858274445674_5820839570229551222_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mollie's new mansion </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkjrkPpJMfdPaFGtK8Std_57LfQ83eEEH11tFwuRw2kIwudx2IIHLDhMW-QUFK-_dVVY2bEjE952YFj0FbJn9NyOpkMT6TheJTsrhX9xAzwKCSW9F4SYoPLnkHVl2sbIwT7qTHIoSTi96-/s1600/20664449_10208917488845997_1818127413690974768_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="660" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkjrkPpJMfdPaFGtK8Std_57LfQ83eEEH11tFwuRw2kIwudx2IIHLDhMW-QUFK-_dVVY2bEjE952YFj0FbJn9NyOpkMT6TheJTsrhX9xAzwKCSW9F4SYoPLnkHVl2sbIwT7qTHIoSTi96-/s200/20664449_10208917488845997_1818127413690974768_n.jpg" width="137" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">OGE lineman's Expo </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjglWrm__tHfzGV_h3WFZsP4WCIzEl-4J1rutPUnbjoaqZuBcVG8Tv6_F0xx_vJDOottYZvdPtVMuaLRdkhuPkKGqaHKo5lKl-pynpghdHFmBXuFkuHrHyLnCuoBYm6nkOGlymZ4CF1cB42/s1600/20767942_10208957513366585_9089280156606240248_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjglWrm__tHfzGV_h3WFZsP4WCIzEl-4J1rutPUnbjoaqZuBcVG8Tv6_F0xx_vJDOottYZvdPtVMuaLRdkhuPkKGqaHKo5lKl-pynpghdHFmBXuFkuHrHyLnCuoBYm6nkOGlymZ4CF1cB42/s200/20767942_10208957513366585_9089280156606240248_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">His friend Matt at his birthday party </td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqceZu3pB9h8BRnmRQ7KionUHPK1RAW6QNH6TgtrbmqINbmg2cOR57VwqwWX8DCHHycHdXBWvy7QNZKscwsUHETQ-_gDSvPvbiS7TBNmSE9W1woNiY7rlLpgK4CprNesBJuq0BK88tM6Tl/s1600/20770398_10208957674810621_380574292088375753_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="720" data-original-width="960" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqceZu3pB9h8BRnmRQ7KionUHPK1RAW6QNH6TgtrbmqINbmg2cOR57VwqwWX8DCHHycHdXBWvy7QNZKscwsUHETQ-_gDSvPvbiS7TBNmSE9W1woNiY7rlLpgK4CprNesBJuq0BK88tM6Tl/s200/20770398_10208957674810621_380574292088375753_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">One of Jeremy's best friends, Trey<br /></td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgaXttVvjbGX3PoEHa0z535HIrhXF_x2-FxD0Tf87kRCvh4q1bg__DERPalqcmxCIlZIMzvECD71qM8kz80FMRoxdkmZQO4HhUDnYGnikchkiEmFjDDIUU8jOoGdFBVpw9WlfT_KOZRuRmi/s1600/21078374_10209058760377697_3453023335509123592_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgaXttVvjbGX3PoEHa0z535HIrhXF_x2-FxD0Tf87kRCvh4q1bg__DERPalqcmxCIlZIMzvECD71qM8kz80FMRoxdkmZQO4HhUDnYGnikchkiEmFjDDIUU8jOoGdFBVpw9WlfT_KOZRuRmi/s200/21078374_10209058760377697_3453023335509123592_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">His tent he bought with his money</td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiVP0SHBEHW_FnVxZjKM-gTbxqGoyRvzNfIqECiAoHBPjiP-dVW6f3PdzbKp1SywHvX0L0JYblqi-L3TLt3YXAzfDLZjpiC43RRY1cjWmX-hb9KImQ5X7IqseUOLh9q7WV76NOTul4NkZ7/s1600/21231949_10209069548967405_5905056859396650694_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiVP0SHBEHW_FnVxZjKM-gTbxqGoyRvzNfIqECiAoHBPjiP-dVW6f3PdzbKp1SywHvX0L0JYblqi-L3TLt3YXAzfDLZjpiC43RRY1cjWmX-hb9KImQ5X7IqseUOLh9q7WV76NOTul4NkZ7/s200/21231949_10209069548967405_5905056859396650694_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">50's day at school </td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtDnHlSeL33ziWGbUwIOJYOI1L3XgxxWofDrGWEUvjcmjMzBV58YjlTutlcQdQXEFemI_PYIOLQ5F4xR8FBqjeaeg-O86VG1z5Dd55QiO7cv9bMELpPXVJyRcPrNtXmLxQRcXHnvI2_H_z/s1600/21765302_10209212427339275_4543735556858199648_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="960" data-original-width="720" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtDnHlSeL33ziWGbUwIOJYOI1L3XgxxWofDrGWEUvjcmjMzBV58YjlTutlcQdQXEFemI_PYIOLQ5F4xR8FBqjeaeg-O86VG1z5Dd55QiO7cv9bMELpPXVJyRcPrNtXmLxQRcXHnvI2_H_z/s200/21765302_10209212427339275_4543735556858199648_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jeremy's new ride, hew as so proud </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6ZUEprDKszAMYNp-kKyEu2p8slg34bPyPji9_v0_k4Osy5-2AJ2hzBugbtYwyGXyDRV32U9d6wb_qplWdrjqQATYx4edpBzKTQoFn_mOMcD8Pys8ueyGpuza9m6EqX6F17RMaYpJZ7Bs_/s1600/IMG_3044.JPG" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="640" data-original-width="480" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6ZUEprDKszAMYNp-kKyEu2p8slg34bPyPji9_v0_k4Osy5-2AJ2hzBugbtYwyGXyDRV32U9d6wb_qplWdrjqQATYx4edpBzKTQoFn_mOMcD8Pys8ueyGpuza9m6EqX6F17RMaYpJZ7Bs_/s200/IMG_3044.JPG" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Seattle Aquarium, I felt like I was home being mean mugged</td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLzH8sInqP1epQIOTC5OrlCrxtswDvT02L8c73RxIJPvH0aighOEEVsPRq6l0maZtz2z-vbXWvB2EccD1M31llYdShEDhkjPssD_KsyzSTEn5OiF8E65_XKrgxg9HFCWhsa7fVR5OX3FKE/s1600/IMG_3101.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="640" data-original-width="480" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLzH8sInqP1epQIOTC5OrlCrxtswDvT02L8c73RxIJPvH0aighOEEVsPRq6l0maZtz2z-vbXWvB2EccD1M31llYdShEDhkjPssD_KsyzSTEn5OiF8E65_XKrgxg9HFCWhsa7fVR5OX3FKE/s200/IMG_3101.JPG" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Seattle Space Needle, amazing </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMbR9RxojXwh4BFhwONbey7rugatxc3YkBlbpJ-70_2_FotSGvf1d0RptLuSRWQz1SgvsTnkwpQf9WydJqPt5B71lyQxXwYRN3VwEdgjKhuSTMuaEg3CB2rqlihRRBFJqSqye3ctB516J2/s1600/IMG_6642.JPG" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="640" data-original-width="480" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMbR9RxojXwh4BFhwONbey7rugatxc3YkBlbpJ-70_2_FotSGvf1d0RptLuSRWQz1SgvsTnkwpQf9WydJqPt5B71lyQxXwYRN3VwEdgjKhuSTMuaEg3CB2rqlihRRBFJqSqye3ctB516J2/s200/IMG_6642.JPG" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I made her ride the GREAT Seattle Wheel<br /></td></tr>
</tbody></table>
<div class="MsoNormal" style="text-indent: .5in;">
<br /></div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-61792857050901978922017-05-05T11:13:00.000-05:002017-05-05T11:13:02.785-05:00Tell your heart to beat again !!!!!!!
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span lang="EN" style="color: #333333; font-family: "Verdana",sans-serif; font-size: 10pt; mso-ansi-language: EN; mso-bidi-font-family: Helvetica;"><span style="color: #ffe599;">I heard this song on Tuesday, like I have
many times, BUT, it seem to put words to what my heart was feeling and trying
to say.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
<span style="color: #ffe599;">
</span><br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span lang="EN" style="color: #333333; font-family: "Verdana",sans-serif; font-size: 10pt; mso-ansi-language: EN; mso-bidi-font-family: Helvetica;"><span style="color: #ffe599;">Jeremy has had a rough start to the year,
he continues to have multiple appointments, multiple illness resulting in
multiple antibiotics.<span style="mso-spacerun: yes;"> </span>Then a recent
hospitalization for an UTI with 2 different strands of bacteria and 2 skin
infections with a different strand of bacteria that grew out MRSA.<span style="mso-spacerun: yes;"> </span>Jeremy was having signs of an UTI, showed me
his elbow which had a sore on it.<span style="mso-spacerun: yes;"> </span>We
went to see his doctor on Friday, did an urine culture & skin culture and
we started on an antibiotic.<span style="mso-spacerun: yes;"> </span>He had some
red looking sores on his lower leg but they were just red looking sores.<span style="mso-spacerun: yes;"> </span>He maintained on Saturday, his urine was
clearing up, his elbow was looking a little better and the bumps on his leg seemed
to disappear, I also know it takes a while for the antibiotic to start
working.<span style="mso-spacerun: yes;"> </span>His home health nurse came in
Sunday and literally this was GOD because she did an assessment and right away
noticed his leg was swollen and not in good shape.<span style="mso-spacerun: yes;"> </span>We got to the ER and within an hour his leg
started to ooze a little, then drain.<span style="mso-spacerun: yes;"> </span>We
were admitted, numerous test, IV antibiotics.<span style="mso-spacerun: yes;">
</span>The next day he felt so bad and had surgery to clean out a nasty abscess
basically the entire length of his leg, surgeon placed 3 drains and then packed
the elbow.<span style="mso-spacerun: yes;"> </span>The Infectious disease doctor
got on board and narrowed down antibiotics that would target the strains of
bacteria he had.<span style="mso-spacerun: yes;"> </span>We were discharged with
multiple follow up appointments, 2 different antibiotics and a plan to prevent future
staph infections of the skin.<span style="mso-spacerun: yes;"> </span>This was
scary, how quickly it spread, how quickly Jeremy crashed and he was so close to
being septic, dying or possibly could have lost his leg.<span style="mso-spacerun: yes;"> </span>His recovering has been slow, and we just
allow him to rest when needed.<span style="mso-spacerun: yes;"> </span>The last
few days he is being more himself, laughing, ornery, back to doing his mean
mugging look while doing his donkey kick.<span style="mso-spacerun: yes;">
</span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span>I’m still battling lack of nursing and OHCA
decided he only needs 5 days a week but I found out yesterday the doctor
revoked his decision and we keep our days.<span style="mso-spacerun: yes;">
</span><o:p></o:p></span></span></div>
<span style="color: #ffe599;">
</span><br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="color: #ffd966;"><span lang="EN" style="color: #333333; font-family: "Verdana",sans-serif; font-size: 10pt; mso-ansi-language: EN; mso-bidi-font-family: Helvetica;"><o:p><span style="color: #ffe599;"> </span></o:p></span><span lang="EN" style="color: #333333; font-family: "Verdana",sans-serif; font-size: 10pt; mso-ansi-language: EN; mso-bidi-font-family: Helvetica;"><span style="color: #ffe599;">Jeremy has a week left of school, we will
prepare for summer camp the end of June and when he goes to camp I get to go to
Florida for a week.</span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
<span style="color: #ffe599;">
</span><br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="color: #ffe599;"><span style="color: #262626; font-family: "Verdana",sans-serif; font-size: 10pt; mso-bidi-font-family: Arial; mso-bidi-font-weight: bold; mso-style-textfill-fill-alpha: 100.0%; mso-style-textfill-fill-color: #262626; mso-style-textfill-fill-colortransforms: "lumm=85000 lumo=15000"; mso-style-textfill-fill-themecolor: text1; mso-themecolor: text1; mso-themetint: 217;"><o:p><span style="color: #ffe599;"> </span></o:p></span><span style="color: #262626; font-family: "Verdana",sans-serif; font-size: 10pt; mso-bidi-font-family: Arial; mso-bidi-font-weight: bold; mso-style-textfill-fill-alpha: 100.0%; mso-style-textfill-fill-color: #262626; mso-style-textfill-fill-colortransforms: "lumm=85000 lumo=15000"; mso-style-textfill-fill-themecolor: text1; mso-themecolor: text1; mso-themetint: 217;"><span style="color: #ffe599;">January 24, was a day that shattered my world, literally.<span style="mso-spacerun: yes;"> </span>I took off work early to go to mom’s and ride
with her and my sister to my uncle’s funeral.<span style="mso-spacerun: yes;">
</span>We stopped in Chandler to pick up my aunt (my dad’s only sibling still
living).<span style="mso-spacerun: yes;"> </span>We talked, laughed, enjoyed the
time.<span style="mso-spacerun: yes;"> </span>Mom started to not feel well after
the funeral when we were at my cousin’s house, so we headed home, dropped off
my aunt at her house, snapped a few selfies one with my aunt & one with my
mom.<span style="mso-spacerun: yes;"> </span>I rode in the back with mom.<span style="mso-spacerun: yes;"> </span>We headed home and approximately 3 miles from
mom’s house she died of a massive heart attack.<span style="mso-spacerun: yes;">
</span>I was giving her CPR until a nurse friend arrived and then
paramedics.<span style="mso-spacerun: yes;"> </span>We thought at one point she
was responding.<span style="mso-spacerun: yes;"> </span>When we arrived at the
hospital we were not expecting the ER doctors to tell us that mom didn’t
survive and Paramedics never regained a pulse.<span style="mso-spacerun: yes;">
</span>I was in shock, never when everything was happening did it dawn on me
that mom wouldn’t survive.<span style="mso-spacerun: yes;"> </span>My mom, the
woman who had always been in my life, was there when I was born, she not only
taught me about GOD but she showed me GOD.<span style="mso-spacerun: yes;">
</span>A true Proverbs 31 woman, loved her husband when he wasn’t loveable,
loved her children when we weren’t loveable, mom took care of her family, never
thought of herself, a wise woman, full of wisdom and she was gone.</span><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
<span style="color: #ffe599;">
</span><br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span lang="EN" style="color: #333333; font-family: "Verdana",sans-serif; font-size: 10pt; mso-ansi-language: EN; mso-bidi-font-family: Helvetica;"><span style="color: #ffe599;">I don’t understand and never will, but GOD
doesn’t call me to understand but to trust him.<span style="mso-spacerun: yes;">
</span>That is faith.<span style="mso-spacerun: yes;"> </span>His perfect ways
tells me I won’t understand but that is the freedom, I know GOD has this, he is
working everything out for good.<span style="mso-spacerun: yes;"> </span>This is
my temporary home, my plan is when I pass away from this earth in which I will
is to step over to the other side, in GOD’s presence, to see him face to face,
to no longer wonder about all the complications of this world because they will
have all faded away.<span style="mso-spacerun: yes;"> </span>It will at that
moment be clear.<span style="mso-spacerun: yes;"> </span>I am human and weak, I
am human and in need of a Savior and GOD is that savior.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
<span style="color: #ffe599;">
</span><br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span lang="EN" style="color: #333333; font-family: "Verdana",sans-serif; font-size: 10pt; mso-ansi-language: EN; mso-bidi-font-family: Helvetica;"><span style="color: #ffe599;">Loosing mom I wasn’t prepared for, I found
my life shattered in a way it’s never been, a time that this world drives me to
my knees, you think you are never going to get back to the you that used to
be.<span style="mso-spacerun: yes;"> </span>I’ve had to give myself pep talks,
I’ve had to tell myself to breathe, I had to tell myself to get up and live
life.</span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center; text-indent: 0.5in;">
<span lang="EN" style="color: #333333; font-family: "Verdana",sans-serif; font-size: 10pt; mso-ansi-language: EN; mso-bidi-font-family: Helvetica;"><strong><span style="color: #ffe599; font-size: small;"><em>Trust GOD-his perfect time and will and
plan !!!!!!!</em></span></strong><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjsUzMYLTWtWlnqxO7uoIne0I6iE9qVgFUDIVqLyhbrMPh20GVUxu_rNE9IBxFV_zRW93NR_YO4Eaets0P7sIfqgcy9SmfOfaJo7BnJrPwA8tkor34MwYF470Um1_Mqu4TniX8iYQ_qN7k1/s1600/IMG_1123.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjsUzMYLTWtWlnqxO7uoIne0I6iE9qVgFUDIVqLyhbrMPh20GVUxu_rNE9IBxFV_zRW93NR_YO4Eaets0P7sIfqgcy9SmfOfaJo7BnJrPwA8tkor34MwYF470Um1_Mqu4TniX8iYQ_qN7k1/s320/IMG_1123.JPG" width="240" /></a></div>
<span lang="EN" style="color: #333333; font-family: "Verdana",sans-serif; font-size: 10pt; mso-ansi-language: EN; mso-bidi-font-family: Helvetica; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin;"><br />
</span><br />
<span lang="EN" style="color: #333333; font-family: "Verdana",sans-serif; font-size: 10pt; mso-ansi-language: EN; mso-bidi-font-family: Helvetica; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin;"><span style="color: #ffe599;">You're shattered<br />
Like you've never been before<br />
The life you knew<br />
In a thousand pieces on the floor<br />
And words fall short in times like these<br />
When this world drives you to your knees<br />
You think you're never gonna get back<br />
To the you that used to be<br />
<br />
Beginning<br />
Just let that word wash over you<br />
It's alright now<br />
Love's healing hands have pulled you through<br />
So get back up, take step one<br />
Leave the darkness, feel the sun<br />
Cause your story's far from over<br />
And your journey's just begun<br />
<br />
Let every heartbreak<br />
And every scar<br />
Be a picture that reminds you<br />
Who has carried you this far<br />
'Cause love sees farther than you ever could<br />
In this moment heaven's working<br />
Everything for your good<br />
<br />
Tell your heart to beat again<br />
Close your eyes and breathe it in<br />
Let the shadows fall away<br />
Step into the light of grace<br />
Yesterday's a closing door<br />
You don't live there anymore<br />
Say goodbye to where you've been<br />
And tell your heart to beat again<br />
Your heart to beat again</span></span><br />
<span lang="EN" style="color: #333333; font-family: "Verdana",sans-serif; font-size: 10pt; mso-ansi-language: EN; mso-bidi-font-family: Helvetica; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin;"><span style="color: #ffe599;"></span></span><br />
<span lang="EN" style="color: #333333; font-family: "Verdana",sans-serif; font-size: 10pt; mso-ansi-language: EN; mso-bidi-font-family: Helvetica; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin;"><span style="color: #ffe599;">Words & song By Danny Goeky</span> </span>Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-81083440345234743112016-12-31T17:17:00.001-06:002016-12-31T17:17:52.788-06:00Who's the guide of your journey !!!!!!<div class="MsoNormal">
Who guides your journey?
<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Our year in re-cap and end of year thoughts and I’m going to
start this blog off with what it is, this was absolutely one of the craziest,
full of change years we’ve had, but I can also say with absolute certainty to GOD
be the glory. His mercies are new every
morning, he sustained us, gave me strength because without it I would not have
survived this year. We are stronger and
my relationship with GOD means more to me than ever. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
We started January with the news that our Pediatrician, Dr. Scott
Cyrus, who has been our PCP for since birth was moving to New Mexico and that
rocked my world. I then found out my boss
was moving back to OKC and I would be getting a new boss. Jeremy then started having something going on,
he was having headaches, rubbing his eyes not sure but something was causing
him pain. We already had a follow up with
Neurosurgery from the December shunt revision, CT scan and shunt series X-ray
showed the shunt was working. Pulmonary repeated
the echo-cardiogram and his pulmonary hypertension was holding steadfast with
last year. A typical Wednesday day for
us, Jeremy goes to school, I go to work come out of a meeting with over 15
missed calls & texts to find out that Jeremy had fell back and gashed his
head open, luckily Cyrus was in the office that day, so he cleaned his head and
put in staples, it was a pretty big gash.
Then Jeremy started to get one UTI after another, he would finish a
round of antibiotics and 3-4 days later symptoms would arise, we started doing
a Gentamicin flush each night and he’s been UTI free. His eyes checked out good, his ears checked
out good, teeth checked out good. I had
applied and was awarded the grant to attend the American College of Medical
Genetics Conference as an advocate and it would be in Tampa Bay. I was so excited that I was chose to go from
Oklahoma with another advocate but there was a questions of if I would get to
attend up until the Friday before I left because something was going on with Jeremy. We ended up in doctor office that Monday with
strep throat, so he was on another antibiotic.
I did get to go, met wonderful new advocates, information was overwhelming
but motivating. I even got to visit with
a retired OGE friend who moved to Jacksonville, FL. I was reconnected with Jeremy’s past Geneticist,
Dr. Moggandam. We survived spring, had
some house issues, plenty of repairs were made.
Jeremy was starting to level out with his health. My home health nursing agency was not filling
all of Jeremy’s shifts so that made life crazy for us, when our primary nurse
was gone on vacation for 2 weeks. Jeremy
attended Camp Barnabas, had a GREAT time.
I got a new boss at work, as well as a few other job changes. My Agency got us another nurse and our shifts
were filled. We went to Columbia, Missouri
for a few days to see Dr. Dan and a few day mini-vacation. We were rocking summer and moving into fall. I got an opportunity to go to Omaha, NE for a
weekend for some awesome, mentoring training, and then attend the Heartland
Collaborative Conference in Little Rock for 3 days. I will say, this was a tease of calm, a calm
before the storm. I found out that my
home health agency was closing Tulsa office and we could transfer to OKC, so I
decided to transfer only to have the rug pulled out from underneath me as they
said, “OH sorry we aren’t taking Jeremy”.
We had one of nurses during this time to retire, which we were sad
because we’ve had her for over 4 years and she filled a day for us and then
filled in other times, but we understood she needed to care for her dad. I started to use my advocacy skills and let
my voice be heard about how wrong this was, how hurtful this was to the
clients, the children, my son. A new
agency was picked and we were settling in, with our faithful, beloved nurse who
followed us. We had been with them a
week, adjusting to new people when Jeremy’s knee swelled up. A trip to the ER visit which included a knee Ultrasound,
blood work, 1 dose of IV antibiotics and we were sent home on oral antibiotics. I just assumed this was the end of that, we
would do the antibiotics, I mean he’s had cellulitis before but a follow up
with our doctor office the next day lead to an admission by Dr. Phung (who is
in our doctor’s office and is AMAZING). We
stayed for 2 days and he responded so well to the IV antibiotics so we got to
come home the day before Thanksgiving. The
next week he finished his antibiotics and his knee was starting to look bad, I
had this feeling it was going to come back with a vengeance. A doctor appointment with Dr. Phung, blood
test, Ultrasound we were re-admitted for 7 days, that time included knee
surgery to clean out that knee and get rid of the infection, strong IV antibiotics. A time I didn’t realize I could be so
physically exhausted but it was only by the grace of GOD. We came home and had follow up blood test, doctor
appointments, more blood test until Jeremy’s
C-reactive protein level came down to normal.
There was a time that I was sure that we weren’t quit out of the woods
and would be readmitted for possible draining the knee or surgery. I’m honest when I say, I’m still not sure
that won’t be in our future, his knee is still puffy, it looks better but still
puffy. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Although it was a whirlwind year, we were blessed with help
from our friends, church, family who stood by our side and pitched in to help
when I needed. Dr. Phung is our newest
Super-hero and how he put into place a quick plan for Jeremy. I continue my work with Oklahoma Family
Network, my mission & my passion, plug along at OG&E with new boss, co-worker
in Sapulpa & Muskogee. Jeremy is
loving school and ready to return next week.
Mollie the “crazy” cat, is still the crazy cat who entertains us. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
We will bring in the Year 2017, pretty much like any other
year in bed asleep. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I close this post with my new Motto and somehow I need to
figure out the way to get a book started on this journey. I just trust GOD for the doors to open if
that is his will but until then I continue to blog. <o:p></o:p></div>
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<div class="MsoNormal" style="text-align: center;">
<b>“I don’t trust the Journey, but I trust my GOD who
determines the journey”!!!!!!!! </b><o:p></o:p></div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-72151417980635046652016-11-27T17:51:00.003-06:002016-11-27T17:51:28.482-06:00My plans = Train Wreck<div class="MsoNormal">
The Definition of plan is, “scheme or method of acting,
doing, proceeding, making, developed in advance” there is nothing wrong with
making plans. GOD seems to be trying to
teach me when my plans fail and they do, that they are nothing more than my
plans, they aren’t his plans. I’m
guessing that I’m not getting the point.
It is also embedded in my soul to be organized, my soul is happy with I
have things organized, and that definition is “functioning in an orderly way or
according to a plan”. Oops it all goes back to that word, “PLAN”. Don’t get me wrong, there is nothing wrong
with making plans or being organized, it helps me along the way to make sure I
achieve what needs to be but when my plans fail and it my biggest frustration at
that point it is wrong and it shows that I’m not trusting GOD that he is
capable of dealing with my life, as if he needs my help. God knows what plans he has for my life and
what plans he has for Jeremy’s life. </div>
<div class="MsoNormal">
<o:p></o:p></div>
<div class="MsoNormal">
Jeremy started out a sick baby caught everything, from the
age of 3 to 10 he just got normal & occasional childhood illness and I
would say with what he started with he was overall healthy. These past years have been tough because he
gets sick easily, and this past year it seems like it’s been a constant theme
in our house. He started a fever on
Sunday so we figured he was trying to fight off an UTI or possible his strep,
but he was out of school all week. Sunday
night he was very restless, moving his right leg like crazy but he has restless
leg syndrome and actually takes medicine for it. He had PT on Monday and apparently his knee
was red & hot to the touch. I asked
about it being infected, but no obvious infection. I figured probably aggravated by therapy but
by the time I got home and looked at his leg it was horrible, red, swollen (felt
like a balloon) so off to the ER we went.
The ER did blood work, X-ray and US of the knee. There was no fluid in the knee. My plan that night was, I have a nurse until
midnight so I am going to get some sleep.
We got home from the ER about 11:30pm, with diagnoses of cellulitis, script
for antibiotics and follow up with our doctor the next day. If that infection was to break loose or keep
spreading, it would have spread like wild fire and Jeremy could have been
septic. We weren’t out of the woods yet,
and the next day his knee didn’t look any better, not worse so the PA felt like
we needed to be admitted. My plan on
Tuesday night was to get home, go to bed since I had a nurse until midnight. My plan was to have a nurse on Thursday,
Friday & Saturday and get to do some shopping & relax on my
thanksgiving break but since Maxim’s big ordeal and cutting us loose that wasn’t
going to happen. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I have learned through the years (with some input from my
Pastor Mike & his wife Karen) that Proverbs is a chapter of wisdom. In fact Proverbs 1: 2-7, to know “wisdom and
instruction: to discern the sayings of understanding; to receive instruction in
wise behavior; Righteousness, justice and equity: to give “prudence to the naïve,
to the youth knowledge and discretion: a wise man will hear and increase in
learning and a man of understanding will acquire wise counsel: to understand a proverb and a figure, the
words of the wise and their riddles: The fear of the Lord is the beginning of
knowledge, fools despise wisdom and instruction. Then Proverbs, 3:5, to not lean on my own
understanding but to always Trust God. I
need to seek his way, his words, his wisdom and the right path for my
life. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
So, how did I get the title for this blog, interesting and
it comes from living life in Jeremy World which includes, the crazy Mollie
cat. God knew I needed an extraordinary
child, one to keep me humble and focus on what was important. I started last week with the thought of
needing to do a blog post and I know GOD gives me these words &
thoughts. I kept going back to the word
plan but wasn’t sure what direction to go with this, my first thought was whirlwind
but I have to give credit to Mollie the cat for her train-wreck she created for
me on Saturday morning. Mollie was doing
sprints all through the house, thumping & jumping on everything I imagine,
jumped on the bed and then my head. I walk into the living room to see this and
think, Yep this is the theme, so train-wreck came from Mollie’s part. My long term plan is to write children’s
books about the adventures of a boy and his cat. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Enjoy Mollie's visual effects and her contribution to the blog....</div>
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Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-61499929234140161632016-06-10T13:50:00.004-05:002016-06-10T15:10:08.931-05:00When you don't move that mountain !!!!!! <br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";">I have been thinking about needing to update the blog, I
will work on it, it’s not right, change it, sometimes delete it all together
and start over.<span style="mso-spacerun: yes;"> </span>I pray about what I post
and wait for GOD’s inspiration, sometimes it takes months to get a blog
post.<span style="mso-spacerun: yes;"> </span>I do this because my long term
goal is to write a book.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<span style="font-family: "calibri";"><span style="mso-spacerun: yes;"> </span><o:p></o:p></span><br />
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";">Where
did I get the title, one of my favorite songs from Lauren Daigle, “I will trust
in you”.<span style="mso-spacerun: yes;"> </span>It’s also means so much to me
as this is a season in my life of GOD teaching me.<span style="mso-spacerun: yes;"> When I hear this song I am normally singing it at the top of my lungs, why because I believe with everything in me...</span></span></div>
<span style="font-family: "calibri";"></span><br />
<span style="font-family: "calibri";">We started the year out in a
whirlwind so I will summarize because we did see our entire team of specialist
in the first two months of the year:<o:p></o:p></span><br />
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";"><span style="mso-tab-count: 1;"> </span></span></div>
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: "calibri";"><span style="mso-spacerun: yes;">
</span>Pulmonary<span style="mso-spacerun: yes;"> </span>- Jeremy’s pulmonary
hypertension a concern, let’s do another echocardiogram to see where we are at,
the future is possible sleep study to fit for a bi-pap and some point
medicine.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: "calibri";">Cardiology – actually
echocardiogram looked good & pulmonary hypertension is holding stable with
last year so we will repeat the echocardiogram in a year.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: "calibri";">Neurosurgery – I really thought he
was going to end up with another shunt surgery, but shunt series & CT all
looked good, ventricles are smaller in size and shunt tubing is in place, we
follow up in a year.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: "calibri";">Urology- he was having one UTI
after another, he would finish an antibiotic and 3-4 days later he was having
symptoms so we increased Gent solution to every night, so far that is working
with no antibiotics since March.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: "calibri";">Orthopedic – one of the X-rays
mentioned that his hips looked to be out of place but Dr. Dan did several
X-rays, and hips were not out of place, always a heart wrenching appointment
since his spine is progressing.<o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: "calibri";">ENT- he was able to check out his
ear & canals on the previous CT we did in January and his ears were all
cleared which was good news because the CT was taken the day Jeremy was in lot
of pain.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: "calibri";">Dentist – his teeth looked good
none looked to be infected on an X-ray<o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: "calibri";">Pediatricians – Cyrus, Phung & Siswasto
(yes we seen them all) Jeremy fell at school gashed his head open, Cyrus put
him back together with staples in his head, Siswasto removed them.<span style="mso-spacerun: yes;"> </span>Phung ordered test on a Sunday because the
night before Jeremy kept having desaturations and we found Jeremy to have a
high white blood count, RSV, (RSV? He never even got as a small child).<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt 0.5in;">
<span style="font-family: "calibri";">Neurologist – actually we are doing
well in this department.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<span style="font-family: "calibri";"><span style="mso-tab-count: 1;"></span></span><br />
<span style="font-family: "calibri";"> I was
fortunate and got to attend the American College of Medical Genetics conference
in Tampa, Florida, being part of the National Center of Collaborative and
represent our Heartland Genetics as an advocate with another lady from Tulsa
area.<span style="mso-spacerun: yes;"> </span>We flew out of Tulsa on March 8
and came back on March 12.<span style="mso-spacerun: yes;"> </span>I had a great
time, met many new advocates, made new connections.<span style="mso-spacerun: yes;"> </span>I got to meet up with a friend who retired
from OG&E, we had dinner one evening, took a dolphin tour.<span style="mso-spacerun: yes;"> </span>I left there with a renewal that we need to
get back to find<span style="mso-spacerun: yes;"> </span>a diagnose for
Jeremy.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span><br />
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";">Jeremy
completed 10<span style="font-size: small;"><sup><span style="font-size: xx-small;">th</span></sup> grade on May 12, he’s had a slow summer and leaves
for Camp Barnabas next week, excited for him to attend again although he keeps
telling me no.<span style="mso-spacerun: yes;"> </span>Mulley the cat he has
aggravated for days, she keeps looking at me like really?<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: "calibri";">I
started in April trying to get our nursing agency to fill Jeremy’s open shifts
and he was soon to get out of school and our primary nurse going on
vacation for 3 weeks the end of May.<span style="mso-spacerun: yes;"> </span>I
was told, due to the “proposed” 25% provider cuts they weren’t hiring any new
shifts so if a nurse was looking for hours that is how it would be filled.<span style="mso-spacerun: yes;"> </span>I started advocating by writing letters,
calling my state elected officials, praying GOD, move those mountains, I can’t
do this.<span style="mso-spacerun: yes;"> I finally seen I needed to adjust </span>my attitude and
settled myself down, went to battle and was going to do it with joy in my heart
because GOD was whom I had my trust in.<span style="mso-spacerun: yes;">
</span>We were on our 3<span style="font-size: small;"><sup><span style="font-size: xx-small;">rd</span></sup> week of reduced nursing shifts.<span style="mso-spacerun: yes;"> </span>I was thankful that my one nurse was able to
work several reduced shifts to help us out, then our HTS worked as many hours
as she could to fill some gaps.<span style="mso-spacerun: yes;"> </span>I had
friends, family who offered to help.<span style="mso-spacerun: yes;"> </span>On
top of being exhausted, I’ve been battling rules & regulations, jumping through
hoops to get the money moved on Jeremy’s waiver to hire an additional HTS and on Thursday, June 9, an email was the straw that broke the camel’s
back.<span style="mso-spacerun: yes;"> </span>I sit at my desk at work almost in tears, I started talking
to GOD and asked, “how long do I keep fighting?<span style="mso-spacerun: yes;"> because
</span>I’m tired just give me strength”.<span style="mso-spacerun: yes;"> </span>I made my mind up I wasn’t giving up
and was marching forward.<span style="mso-spacerun: yes;"> </span>That next
minute I receive an email from my nursing agency that our nurse is back from
vacation and wants to work Friday & Saturday, I had tears well up in my
eyes and such awe and<span style="mso-spacerun: yes;"> </span>the fact that GOD
already seen this day, he was working everything out for his good.<span style="mso-spacerun: yes;"> </span>I am his child, he hears every prayer, he
sees every tear, he sees every exhausting moment and my GOD is bigger than
everything.<span style="mso-spacerun: yes;"> </span></span></span><br />
<span style="font-family: "calibri";"></span><br />
<span style="font-family: "calibri";">Letting go of every single dream I lay each one down at your feet, every moment of my wondering, Never changes what you see, I try to win this war I confess, my hands are weary, I need your rest Mighty Warrior, king of the fight No matter what I face you're by my side.</span><br />
<span style="font-family: "calibri";"></span><br />
<span style="font-family: "calibri";">When you don't move the mountains I'm needing you to move When you don't part the waters I wish I could walk through, </span><span style="font-family: "calibri";">When you don't give the answers as I cry out to you, I will trust, I will trust, I will trust in you. </span><br />
<span style="font-family: Calibri;"></span><br />
Truth is you know what tomorrow brings, There's not a day ahead you have not seen, <br />
So let all things be my life and breath, I want what you want Lord and nothing less. <br />
When you don't part the waters I wish I could walk through, When you don't give the answers as I cry out to you, I will trust, I will trust, I will trust in you.<br />
<br />
You are my strength and comfort, you are my steady hand, you are my firm foundation, <br />
the rock on which I stand, your ways are always higher, your plans are always good, there's not a place where I'll go you've not already stood.<br />
<span style="font-family: "calibri";"> <br />
<span lang="EN" style="color: black; font-family: proxnov-reg; mso-ansi-language: EN; mso-bidi-font-family: Arial;"> </span></span></div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-57435458547079669882015-12-31T19:32:00.004-06:002015-12-31T19:32:53.785-06:00The end of another year...
<span style="font-family: Calibri;">I always like to reflect back as we say good-bye to
another year and welcome in another new one.<span style="mso-spacerun: yes;">
</span><o:p></o:p></span><br />
<span style="font-family: Calibri;"></span><br />
<span style="font-family: Calibri;">Jeremy gave me a run for my money this year and this
started the 2<sup><span style="font-size: x-small;">nd</span></sup> week in February.<span style="mso-spacerun: yes;">
</span>He ran a little fever one day, was fine the next, to great, to waking up
with a low fever to spiking a high fever by afternoon which earned us more
frequent flyer miles to running tests.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span>He then started that night with desaturations
and only maintaining in the low 90’s on 2.5lpm of oxygen, if I had turned him
up anymore he would have been sent to the hospital via ambulance and would have
been intubated to give his lungs & heart a break so they wouldn’t work so
hard.<span style="mso-spacerun: yes;"> </span>He maintained through the night
and trip next day to doctor he was diagnosed with pneumonia & strep throat
and put on a strong antibiotic.<span style="mso-spacerun: yes;"> </span>Then he
decided in March that he was going to throw us all for a loop and had blood in
his urine so we earned more frequent flyer miles a trip to the ER to only be
admitted and observed for 2 days.<span style="mso-spacerun: yes;"> </span>A trip
to the heart & pulmonary doctors determined he has developed pulmonary hypertension
so that will be watched closely.<span style="mso-spacerun: yes;"> </span>He did
get to go for a full week to Camp Barnabas, and had a great time & his
summer was amazing.<span style="mso-spacerun: yes;"> </span>We started the fall
out with being told, Jeremy no longer has a clinical diagnoses, the test we did
produced changes on many genes but produced no answers in relationship to any
of his conditions.<span style="mso-spacerun: yes;"> </span>Then the whirlwind
beings, a bad UTI but threw us a curve with some other issues and ended up with
a really bad ear infection.<span style="mso-spacerun: yes;"> </span>We got that
cleared up only to see the dentist for a 6 month check and for it to be
determined he had an abscessed tooth that needed to be pulled.<span style="mso-spacerun: yes;"> </span>I thought we had got everything with his
head, well December 11 something felt wrong with him, he was increasing in
aggression, head hurting, tired, loss of appetite so a trip to the doctor to
get a CT scan & shunt series earned us more frequent flyer miles with a
3:30pm phone call to head to the ER his shunt tubing had dislodged so we were
admitted, surgery the next day to replace the long lost tubing and we were home
by Sunday.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span><br />
<br />
<div class="MsoNoSpacing" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">I end this year with almost 25 years at OG&E and it
continues to be such an awesome job, with some amazing co-workers, several whom
were also having tough times of their own and then we had one lineman who lost his
battle with cancer and we said Good-bye to him.<span style="mso-spacerun: yes;">
</span>We lost several to retirements and gained new ones to replace them.<span style="mso-spacerun: yes;"> We moved into our new facility early November and it's been nice to have a new office, it is really awesome. </span></span></div>
<br />
<div class="MsoNoSpacing" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">I continue my mission with The Oklahoma Family Network celebrating
almost 14 years.<span style="mso-spacerun: yes;"> </span>I was heart-broken in
early February when I lost my friend Super- Gavin, he was my buddy and I had
set with him many times at the hospital, playing with him, listening to him and
I loved that little guy.<span style="mso-spacerun: yes;"> </span>I had a friend
who I have known for many years she brought me coffee one morning while we were
in the hospital in March, after she had a horrifying hospitalization a few
weeks earlier with her daughter in critical condition and 2 months later she lost
her precious Ginny Girl.<span style="mso-spacerun: yes;"> </span>My executive
director asked me about serving on a group, Heartland Genetic Collaborative on
an advocate work group, we have monthly conference calls.<span style="mso-spacerun: yes;"> </span>I was afforded the opportunity to attend the conference
in Kansas City and meet several of the other advocates from other states, and
it was nice to spend that time with them and learn about what they did in their
states to help families and partnerships they have formed.<span style="mso-spacerun: yes;"> </span>I made some great connections and new
friends.<span style="mso-spacerun: yes;"> </span>I was afforded the opportunity
to attend the Executive Directors of the Parent 2 Parent of USA in Phoenix, AZ
along with 12 of my other OFN co-workers in the fall and made some new
connections there and meet up with one of my friends from the Genetic group and
then meet a new one.<span style="mso-spacerun: yes;"> </span>I was thrilled when
an opportunity presented itself, a partnership with local physician in allowing
the Oklahoma Family Network to be present in their clinic days to offer
families that emotional support, informational and resource referral and I’m looking
forward to that relationship coming into the next year.<span style="mso-spacerun: yes;"> </span>I still continue my visits and reaching out
to families which are my passion as well as doing sibshops, it never gets
old.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNoSpacing" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">I started teaching Sunday school in May, something I’ve
not done in a long time and I am so loving it and the children.<span style="mso-spacerun: yes;"> </span>I love teaching them and their tender little
hearts.<span style="mso-spacerun: yes;"> </span>I am also enjoying Monday
evenings sitting with my Pastor & his wife and listening to biblical
counseling lessons on various topics.<span style="mso-spacerun: yes;"> </span>I
can use this to help not just families I connect with but, friends, co-workers,
family and honestly ME.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNoSpacing" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">I was sadden after my cousin’s daughter Morgan had a bad
wreck in December that in July she lost her life, she had battled so long &
hard and came such a long way.<span style="mso-spacerun: yes;"> </span>I had
watched my cousin go through this through their daily post, prayer
request.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNoSpacing" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">I have to say I was humbled this year.<span style="mso-spacerun: yes;"> </span>I am not one to reach out for help, I
struggle with when being asked what can we do, but I’m working on receiving
that.<span style="mso-spacerun: yes;"> </span>I have experienced such amazing
freedom in my relationship with GOD, as I mature a little more in understanding
and studying the word more.<span style="mso-spacerun: yes;"> </span>I have been
able to overcome some anxiety & fear with the help of God.<span style="mso-spacerun: yes;"> </span>GOD is God, I have great comfort in his
promises and that produces so much freedom.<span style="mso-spacerun: yes;">
</span><span style="mso-spacerun: yes;"> </span>I’m a sinner saved by his amazing
grace and trusting his grace alone, through faith alone in Christ alone.<span style="mso-spacerun: yes;"> </span>His death on the cross was absolutely all I
need, and nothing I ever do will be enough but because his death on the cross
that is absolutely all I need.<o:p></o:p></span></div>
<br />
<div class="MsoNoSpacing" style="margin: 0in 0in 0pt;">
<o:p><span style="font-family: Calibri;"> </span></o:p></div>
<br />
<div class="MsoNoSpacing" style="margin: 0in 0in 0pt; text-align: center;">
<span style="font-family: Calibri;"><strong>So, Hello & Welcome 2016………..</strong><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-12590957144678445442015-12-24T13:48:00.000-06:002015-12-24T13:48:23.326-06:00Lean not on my own understanding but in all ways Seek God !!!!!
<br />
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">Jeremy had such an amazing summer but I have to say this has
been a crazy fall season.<span style="mso-spacerun: yes;"> </span>We have
enjoyed unseasonably warm temperatures (which I’m not going to complain).<span style="mso-spacerun: yes;"> </span>We hit the floor running one awesome fall
morning, a leisurely trip to our Neurologist for Botox injections ended with a
visit to Dr. Cyrus.<span style="mso-spacerun: yes;"> </span>We knew he had an UTI
but that didn’t explain the pulling of his ear or rubbing his eye almost raw and
I was frustrated because he was hurting but couldn’t figure it out.<span style="mso-spacerun: yes;"> </span>Well come to find out he had a really bad ear
infection, so with antibiotics he was better and on the mend.<span style="mso-spacerun: yes;"> </span>We went to see our dentist for a 6 month check-up
on Oct 1, found Jeremy an abscessed tooth, decision was made to remove it and
surgery scheduled on October 13.<span style="mso-spacerun: yes;"> </span>He did
great through surgery and recovered so I thought wow that should take care of
everything going on with his head.<span style="mso-spacerun: yes;"> </span>He
started back with putting his hand in his mouth and I couldn’t imagine that he
had a bad tooth, or ear infection but that turned into increased crankiness, agitation
and a visit to Pediatrician on Dec 11, nothing notable so a CT scan & shunt
series was ordered, a 3:30pm phone call to go to the ER to possibly be admitted
and his shunt tubing has dis-lodged.<span style="mso-spacerun: yes;">
</span>Jeremy had surgery on Saturday, and recovered unbelievably quickly and
we were discharged on that Sunday.<span style="mso-spacerun: yes;">
</span>Jeremy has really been a different boy, it’s sad that sometimes I forget
how bad he feels until I see how good he is feeling, this is absolutely hands
down the very worst part of having a non-verbal child.<span style="mso-spacerun: yes;"> </span>The results of the Whole Exome Sequencing
test didn’t produce any answers.<span style="mso-spacerun: yes;"> </span>I was
disappointed as I just knew that something would surface.<span style="mso-spacerun: yes;"> </span>They will re-run the data in a year and see
if anything new is present with science or Jeremy.<span style="mso-spacerun: yes;"> </span>We may someday receive an answer.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">I started in spring on an advocate work group for the
Heartland Genetic Collaborative.<span style="mso-spacerun: yes;"> </span>Our
Heartland group covers 8 states, Iowa, Oklahoma, Arkansas, Missouri, Nebraska,
Kansas, and South Dakota & North Dakota.<span style="mso-spacerun: yes;">
</span>It was fun to attend the conference in Kansas City, and meet face to
face the group in which we have a monthly conference call.<span style="mso-spacerun: yes;"> </span>It was very informative and I learned from so
many.<span style="mso-spacerun: yes;"> </span>I then got to attend the National
Parent to Parent conference in Phoenix, AZ at the end of October with my
Oklahoma Family Network co-workers, a fun time as well as obtaining new
information, and meeting new families.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span>Then in November we moved into a new facility
at OG&E, it’s been in the works for several years and was completed, so I
have had a busy time as well.<span style="mso-spacerun: yes;"> </span>I started
on Monday evenings with my Pastor and his wife, Karen, going through some
biblical counseling lessons and that has been an awesome study time to learn and
dig even deeper into the word of GOD and even learn more and more about
him.<span style="mso-spacerun: yes;"> </span>These are biblical principles I can
apply to my life, as well as families I serve or people I run into on a daily
basis.<span style="mso-spacerun: yes;"> </span>I can say I’ve got to slow down,
and quit being so busy the month of November & December were crazy busy and
when I’m so busy I don’t listen for God’s voice.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">Mollie, the cat is still around and with us, such a crazy
cat, but fun, keeps us entertained and tolerates Jeremy so well.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">I close this with God is good all the time, absolutely sovereign
& merciful.<span style="mso-spacerun: yes;"> </span>Proverbs 3:5-9, tells me
to, “trust in the Lord with all your heart, and don’t lean on my own
understanding.<span style="mso-spacerun: yes;"> </span>In all ways acknowledge
him, and he will make my path straight.<span style="mso-spacerun: yes;">
</span>Do not be wise in my own eyes.<span style="mso-spacerun: yes;">
</span>Fear the Lord and turn from evil.<span style="mso-spacerun: yes;">
</span>It will be healing to your body and refreshment to your bones.<span style="mso-spacerun: yes;"> </span>Honor the Lord from your wealth and from the
first of all your produce”.<span style="mso-spacerun: yes;"> </span>I don’t understand
the why most the times and I can say one thing I have learned through this
year, a lesson of hard knocks is to no longer ask why, but just trust God, his
will & way is always better than mine and I will never be able to reason it
out enough, my understanding is so limited.<span style="mso-spacerun: yes;">
</span>My hope is found in faith alone, in Christ alone, in grace alone.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span></span><span style="font-family: Calibri;"><span style="mso-spacerun: yes;"> </span></span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;"><span style="mso-spacerun: yes;"></span></span> </div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;"><span style="mso-spacerun: yes;"></span><o:p></o:p></span> </div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-15814398939291978922015-08-28T12:43:00.001-05:002015-08-28T12:43:54.670-05:00My white picket fence is gone, but replaced with Chain link fence....
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Calibri;">August causes me to do reflect upon
my life and I’m sure it’s because of many milestones in my life during that
month.<span style="mso-spacerun: yes;"> </span>I actually started this post
August 1, I would read it, pray for God’s guidance and make changes.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Calibri;">I remember as a little girl my
dream was that prince charming would come riding up on a white horse, rescue me
(not sure from what), we would live happily, married ever after, have 1 boy and
1 girl, cute little corner house with a white picket fence.<span style="mso-spacerun: yes;"> </span>I’m sure I watched too many cartoons.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Calibri;">I can say with all honesty today,
my white picket fence is gone.<span style="mso-spacerun: yes;"> </span>I am
embarking upon the grand age of 50 as a divorced mom, a son with significant
medical/developmental needs.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Calibri;">It was on August 9, 16 years ago
that I started my journey of first becoming mom, that switched quickly to a mom
of a sick child.<span style="mso-spacerun: yes;"> </span>I hated our 11 days in
the NICU, it was day after day of bad news, he won’t walk, never talk, be deaf,
blind and cognitively disabled.<span style="mso-spacerun: yes;"> </span>There
were so many “worse” days, but the day we found out about his heart was the
“worse day” my 6 day old son.<span style="mso-spacerun: yes;"> </span>My focus
quickly switched to will he survive?<span style="mso-spacerun: yes;"> </span>The
first year of multiple testing, few new diagnoses, the heart Cath and then
major open heart surgery.<span style="mso-spacerun: yes;"> </span>It was
actually September 2000 before I think we could classify Jeremy as stable.<span style="mso-spacerun: yes;"> </span>Then in August of 2010, his first major spine
surgery, that didn’t go well and also that year I started my journey as a
single mom.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Calibri;">I reflect back, spent time afraid,
afraid of being alone, afraid God was going to take Jeremy.<span style="mso-spacerun: yes;"> </span>There were many times I would cry out and yes
question God why? Why is this happening?<span style="mso-spacerun: yes;">
</span>I knew in my heart God has a plan & a reason.<span style="mso-spacerun: yes;"> </span>I didn’t doubt God nor his plan, but I
deserved an answer.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">It has been a road of hard knocks for me, some lessons were
not learned the first time, some were harder than others, some were very
painful, some I wasn’t sure I would recover let alone Jeremy.<span style="mso-spacerun: yes;"> </span>There were many moments down on my knees
when all I could do was look up to God and not utter a word but cry tears.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Calibri;">I can say today with great joy and
confidence, there is absolutely a reason, but (I always hated to hear the word
but) I WILL NOT always understand the reason nor the plan, but again that is
ok, because I have learned I don’t have to.<span style="mso-spacerun: yes;">
</span>I believe Jeremiah 29:11, “For I know the plans that I have for you,
declares the <span class="small-caps">Lord</span>, ‘plans for welfare and not for
calamity to give you a future and a hope”<span style="mso-spacerun: yes;">
</span>it says nothing about MY dreams, but again that is ok because as I have
learned along the way, I want my dreams to be in line with the plan God has for
my life.<span style="mso-spacerun: yes;"> </span>I totally trust the GOD who
created the plan for my life and Jeremy’s.<span style="mso-spacerun: yes;">
</span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Calibri;">Do I deserve an answer?<span style="mso-spacerun: yes;"> </span>Honestly, I deserve to die and go to hell, to
be separated for all eternity from God, but because of GOD’s mercy, what he did
on that cross, suffered a death that even if I could have done it, would have
all been in vain because I’m a sinner and needed his grace to save me.<span style="mso-spacerun: yes;"> </span>God owes me nothing, he paid the ultimate
price for my soul and I owe him everything because he’s given me a future
beyond this world and hope beyond this world.<span style="mso-spacerun: yes;">
</span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Calibri;">Today, in Jeremy World, along with
Mulley the cat, we have a chain link fence and I am good with that…<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-36659088640864175052015-07-30T11:11:00.003-05:002015-07-30T11:13:59.991-05:00The Same Power...........<br />
<div class="MsoPlainText" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Georgia, "Times New Roman", serif;">It's been a long time since I've posted. </span></div>
<div class="MsoPlainText" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Georgia, "Times New Roman", serif;">Jeremy has 16 days of summer
vacation left, where did it go.<span style="mso-spacerun: yes;"> </span>We have
had an absolutely nice summer, J-man gets up and gets to do his own thing.<span style="mso-spacerun: yes;"> </span>Jeremy really enjoyed the week at Camp
Barnabas.<span style="mso-spacerun: yes;"> </span>We then took a joy ride the
week after to Springfield to see Dr. Dan, and got there early enough we got to
eat at Lambert’s which he dearly loves & laughs when they throw the rolls. In the morning, when I unlock the door and turn off the
alarm, Jeremy will scoot a kitchen chair to the window and watch for Kristy,
his wonderful, awesome, HTS to come in. Jeremy then starts talking up a storm. Kristy has done some super fun
things with Jeremy and we love her.<span style="mso-spacerun: yes;"> </span></span></div>
<div class="MsoPlainText" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="mso-spacerun: yes;"></span><span style="font-family: Georgia, "Times New Roman", serif;">I
started teaching Sunday school this summer and am loving it, love the
children and Jeremy has been going to Sunday school, sits good. I am starting to try to transition him to worship, our first week he didn’t
even make it to worship, but he will get there.<span style="mso-spacerun: yes;">
</span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<span style="font-family: Georgia, "Times New Roman", serif;"></span><br />
<div class="MsoPlainText" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Georgia, "Times New Roman", serif;">Jeremy gets a new teacher
this year and a bigger room, they got the expansion done and I'm so excited. The same nurse who took care
of him at school will also be there again this year.<span style="mso-spacerun: yes;"> </span>We go meet the teacher and see his classroom
on August 14.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<span style="font-family: Georgia, "Times New Roman", serif;"></span><br />
<div class="MsoPlainText" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Georgia, "Times New Roman", serif;">This weekend is our annual OGE expo, I take 3 of my nephews and they help with Jeremy while I
work.<span style="mso-spacerun: yes;"> </span>They love going, swimming in the
pool and watching the lineman compete and getting free giveaways.<span style="mso-spacerun: yes;"> </span>We come back Saturday exhausted.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<span style="font-family: Georgia, "Times New Roman", serif;"></span><br />
<div class="MsoPlainText" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Georgia, "Times New Roman", serif;"> </span></div>
<span style="font-family: Georgia, "Times New Roman", serif;"></span><div class="MsoPlainText" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Georgia, "Times New Roman", serif;">We did go back to Genetics
101, as Jeremy’s issues don’t seem to meet the FG syndrome diagnose.<span style="mso-spacerun: yes;"> </span>We did see the New Geneticist who does
</span></div>
<span style="font-family: Calibri;"><span style="font-family: Georgia, "Times New Roman", serif;">
</span><div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Georgia, "Times New Roman", serif;">Telemedicine from Arkansas Children’s, he took Jeremy’s pictures and history and presented to a board of 25 Geneticist and no one had a clue or had seen a child similar. We got approved
and did the Full Exome Sequencing test, this will test his 46 chromosomes to
see if there are additions or deletions.<span style="mso-spacerun: yes;">
</span>We did this June 5 and it can take up to 6 months for any results.</span><span style="mso-spacerun: yes;"> </span><o:p></o:p></div>
</span><br />
<div class="MsoPlainText" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
</div>
<br />
<div class="MsoPlainText" style="margin: 0in 0in 0pt; text-align: center; text-indent: 0.5in;">
<u><span style="font-family: Georgia, "Times New Roman", serif;"><o:p><span style="font-size: large;"><strong> </strong></span></o:p><strong><span style="font-size: large;">We have had an amazing summer but
we’ve had some not so great news</span></strong><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></u></div>
<div style="text-align: center;">
<span style="font-family: Georgia, "Times New Roman", serif;"></span></div>
<div class="MsoPlainText" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Georgia, "Times New Roman", serif;">I was sad that my cousin’s
daughter Morgan, passed away on July 3 after a long battle from a car accident
in December.<span style="mso-spacerun: yes;"> </span>Morgan was 16 when she had
her wreck, turned 17 in the Children’s Hospital at Arkansas, she was doing good
at rehab ready to be discharged in June when her organs started shutting
down.<span style="mso-spacerun: yes;"> </span>Morgan was an amazing young lady,
dedicated to GOD and a ray of sunshine.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<span style="font-family: Georgia, "Times New Roman", serif;"></span><br />
<div class="MsoPlainText" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Georgia, "Times New Roman", serif;">Jeremy has had some major regression
in his mobility, he will hardly use his walker, or stand on his legs very much
and falls quickly.<span style="mso-spacerun: yes;"> </span>Our PT feels that its
related to his knee overcompensating.<span style="mso-spacerun: yes;"> </span>We
are going to try some knee braces to see if that does help him.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<span style="font-family: Georgia, "Times New Roman", serif;"></span><br />
<div class="MsoPlainText" style="margin: 0in 0in 0pt; text-indent: 0.5in;">
<span style="font-family: Calibri;"><span style="font-family: Georgia, "Times New Roman", serif;">We also got some not so great
news at his last <span style="font-family: "Calibri","sans-serif"; font-size: 11pt; mso-ansi-language: EN-US; mso-ascii-theme-font: minor-latin; mso-bidi-font-family: "Times New Roman"; mso-bidi-language: AR-SA; mso-bidi-theme-font: minor-bidi; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin; mso-hansi-theme-font: minor-latin;">Pulmonologist</span> appointment, the numbers that measure pulmonary
hypertension continue to increase and although they aren’t to a point to treat,
they continue to rise.<span style="mso-spacerun: yes;"> </span>We will see the <span style="font-family: "Calibri","sans-serif"; font-size: 11pt; mso-ansi-language: EN-US; mso-ascii-theme-font: minor-latin; mso-bidi-font-family: "Times New Roman"; mso-bidi-language: AR-SA; mso-bidi-theme-font: minor-bidi; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin; mso-hansi-theme-font: minor-latin;">Pulmonologist</span>
in January and he will repeat an echo and keep tabs on this.<span style="mso-spacerun: yes;"> </span>I don’t know what this means to Jeremy, but I
suspect highly that winter bringing on colds, bronchitis, pneumonia is not
going to be our friends or be kind.<span style="mso-spacerun: yes;">
</span>Jeremy will have a higher risk of being hospitalized and on a vent.<span style="mso-spacerun: yes;"> </span>The one thing that I do know, is the same power
that rose Jesus from the Dead, the same power that commands the dead to wake, that
moves mountains when he speaks, that can calm a raging sea, is living in
me.<span style="mso-spacerun: yes;"> </span>I have hope that his promises are
true, in his strength there is nothing we can’t do.<span style="mso-spacerun: yes;"> </span>Greater is he living in me, he’s conquered our
enemy, no power of darkness, no weapon prevails.<span style="mso-spacerun: yes;"> </span>I stand in Victory…. (The Same Power, Jeremy
Camp).<span style="mso-spacerun: yes;"> </span>This is quickly becoming one of
my favorite songs.</span><span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-8794618885518489692015-05-21T14:45:00.002-05:002015-05-21T14:45:55.138-05:00Back in the Life of “Undiagnosed” & Genetics -101…
<span style="font-family: Calibri;"> Jeremy was diagnosed with severe FG
syndrome back in 2005 which at the time was a clinical diagnoses and one that
he in fact did fit.<span style="mso-spacerun: yes;"> </span>In fact there were
5-6 categories and Jeremy had 5-6 of the 7 characteristics of each
category.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span>They since have researched and found at least
one gene associated with FG syndrome, the MED12, which Jeremy in fact does not
have.<span style="mso-spacerun: yes;"> </span>I’ve known this for many years because
we participated in a research study for FG and that was where we found the
change on his L1cam gene located on the long arm of the Xq28 chromosome.<span style="mso-spacerun: yes;"> </span>That is the brain gene, so I thought that
could possibly answer a few questions.<span style="mso-spacerun: yes;"> </span>Jeremy
had spine surgery, complications, sick, then our local geneticist left so the issue was moved to the back burner. <span style="mso-spacerun: yes;"> </span>We now do Tele-Genetics in Tulsa with a Geneticist
from Arkansas Children’s Hospital.<span style="mso-spacerun: yes;"> </span>I
have met him on several occasions through St. Francis Children’s at a few
conferences and the Heartland Genetic Conference this past April.<span style="mso-spacerun: yes;"> </span>I thought this would be a good time to
re-visit the issue to see if we could possibly get an answer, I’ve often wondered due to
some issues Jeremy developed. Dr. Schafer
doesn’t feel Jeremy has FG and further research the change on his L1cam gene
was so far down, like a connection of a connection that it’s not significant to
Jeremy so that was good to know and in fact if we hadn’t been doing the research
study that would have never been caught on a test.<span style="mso-spacerun: yes;"> </span>So, Dr. Schafer is going to take Jeremy’s
pictures, his characteristics and present to a board of 25 Geneticist to see,
does anyone have or had a child similar to Jeremy, what do they think as Dr.
Schafer has never had a child similar to Jeremy and he is stumped.<span style="mso-spacerun: yes;"> </span>We are also getting approval for a fairly new
test available the Whole Exnome Gene Sequencing this will go into a further level
to see if there is any mutation/deletion/change on any of Jeremy’s Chromosomes.<span style="mso-spacerun: yes;"> </span>We have to wait to see if insurance will
approve the test, then it can take 6 months to get any sort of answer if we get
any sort of answer, that is also a possibility.<span style="mso-spacerun: yes;">
</span>I’m back to thinking we are going to name our own syndrome but that is
life in Jeremy world, so we wait.<o:p></o:p></span><br />
<span style="font-family: Calibri;"></span><br />
<span style="font-family: Calibri;">Jeremy finished 8<sup><span style="font-size: x-small;">th</span></sup> grade and is out for the
summer, he needs a break and some rest.<span style="mso-spacerun: yes;">
</span>We have a few things planned, he will attend Camp Barnabas on June 7 and
he will have so much fun.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> We are just going to enjoy summer break....</span><o:p></o:p></span><br />
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-75437845568839297502015-04-17T13:20:00.003-05:002015-04-17T13:22:20.342-05:00Compassion and Mercy Jeremy loves to play videos/music on his I-phone over and over so I have listened to Veggie Tales, Jonah and the big fish too numerous to count. I watch a little boy and a cat extend compassion and mercy to each other constantly. Jonah thought he was above needing compassion and mercy but he felt that the Ninevites didn't deserve God's compassion or mercy, when in fact when Jonah was in the belly of the whale, God extended compassion and mercy, plus a second chance to do what GOD had asked. The truth be known the entire world needs GOD'S compassion and mercy every day and my prayer has been that I will extend compassion and mercy. <br />
<br />
We do love spring, these warm days. Jeremy gets to play outside and I can open the windows and let the fresh air blow. We already had a round of tornadoes that were close to us and we were actually headed to our shelter when we got the all clear. I wasn't ready, but now the shelter is. I have us a few folding chairs, a sleeping bag, a plastic container with medical supply and necessities and a tank of oxygen. <br />
<br />
Jeremy gave us another scare on March 22, an awesome Sunday afternoon. Jeremy had blood in his urine and we didn't know the cause so a trip to the ER got us admitted for 2 days for observation. Jeremy had also been irritable and cranky the week before so we didn't know if the kidney stone was moving, and to be honest we still don't know the exact cause. His doctors suspect that he had an UTI, his bladder was already irritated from the in and out catheterization causing some possible trauma. He then pulled out an in-dwelling catheter while in the hospital but had no trauma. If it happens again his Urologist will have to do a scope. Jeremy did get to stay home from school for 2 weeks, which wasn't a good thing he loves school but he needed to heal and wait until the indwelling catheter was removed. We have had problems trying to get consistent nursing staff but we are getting close to being back to full staff. It has been a rough few weeks.<br />
<br />
Jeremy had a visit with our cardiologist and an echocardiogram. His heart looks very similar to last year's echo, so she is happy with that. His heart is starting to show signs that it's getting crowded so we will watch that and go back in another year. <br />
<br />
We did enjoy the Easter weekend, Jeremy got to go back to church and then a family dinner out at Granny's was nice. Jeremy had so much fun. <br />
<br />
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGrPRhIRDJJLBBiWi6bJaGJNh2jwCbIUa_1B9keg0bm3-AfkYCMZf0qPuL27aERIEq6AJMn0hbarkqC8pqmDgSY53klvCi_HUB-qBhuuyepIL2VaTatfbinR-uNG-57cgsqVY8OtY0dZBF/s1600/hospitaljeremy.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGrPRhIRDJJLBBiWi6bJaGJNh2jwCbIUa_1B9keg0bm3-AfkYCMZf0qPuL27aERIEq6AJMn0hbarkqC8pqmDgSY53klvCi_HUB-qBhuuyepIL2VaTatfbinR-uNG-57cgsqVY8OtY0dZBF/s1600/hospitaljeremy.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jeremy at the hospital, not happy</td></tr>
</tbody></table>
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4XqN-qlyAtr267ay7rSNCHzWX3XnTsdjt-jz57vejm0dln0ylyFY4nfFCjgusj76uyJzcsLkVmON1dVkEnqvF583rfV_djKwzYfY6NL7oKwHcvg_agfFEv4VxtIpjTzhexilFd247nENt/s1600/IMG_1290.JPG" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4XqN-qlyAtr267ay7rSNCHzWX3XnTsdjt-jz57vejm0dln0ylyFY4nfFCjgusj76uyJzcsLkVmON1dVkEnqvF583rfV_djKwzYfY6NL7oKwHcvg_agfFEv4VxtIpjTzhexilFd247nENt/s1600/IMG_1290.JPG" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Patriotic Jeremy @ school </td></tr>
</tbody></table>
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKThpWwy1BSGL5rFgTyjkhySPgWYC9cy3kf2UbQjy4w6d8m0jPCfd4QVqdw4JoZC-p55wmhETsF3ViKAx7rE4S6JkV8ZV9l-o1gREVrGXXquyZUPtrB_kwvTbfn8v-H1r8Xr4Wrc5UtLTC/s1600/IMG_1295.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKThpWwy1BSGL5rFgTyjkhySPgWYC9cy3kf2UbQjy4w6d8m0jPCfd4QVqdw4JoZC-p55wmhETsF3ViKAx7rE4S6JkV8ZV9l-o1gREVrGXXquyZUPtrB_kwvTbfn8v-H1r8Xr4Wrc5UtLTC/s1600/IMG_1295.JPG" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jeremy after school </td></tr>
</tbody></table>
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcKhhBBE3xilpCn_fsBkiloVBhzwDZ2IW4AJlKbFMe_PI-zHafsN7Tt4LA-a2KNfN7kvzjtclkgCsQetw1wfwKA1DYpzlTOL0Fg-adAvuxtNmbG0tRl_POhALD_2slntYnxBFoeHSS6JNy/s1600/jeremyandmol.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcKhhBBE3xilpCn_fsBkiloVBhzwDZ2IW4AJlKbFMe_PI-zHafsN7Tt4LA-a2KNfN7kvzjtclkgCsQetw1wfwKA1DYpzlTOL0Fg-adAvuxtNmbG0tRl_POhALD_2slntYnxBFoeHSS6JNy/s1600/jeremyandmol.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jeremy and Mulley<br />
</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHvH3e5SVq90_fyb-4xVA_2FBsgxuXfCO8MPcWnle-_2-VPq9gtILyk5HP93218WRYrnXG3N8tGihu5-eqjXm-tTXMrpgMl94S4yMNEs9-9V5L_8VODqx-YsuEhMQZ29iN7M6AfInXOwP4/s1600/Jeremyeaster.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHvH3e5SVq90_fyb-4xVA_2FBsgxuXfCO8MPcWnle-_2-VPq9gtILyk5HP93218WRYrnXG3N8tGihu5-eqjXm-tTXMrpgMl94S4yMNEs9-9V5L_8VODqx-YsuEhMQZ29iN7M6AfInXOwP4/s1600/Jeremyeaster.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Easter basket goodies</td></tr>
</tbody></table>
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMcr7TBcPbJhjUc2rsqUAUZeXe9wfjqVX11lcnB3e1GT1bRzl50vpuAArSmyL_0hw_VMSgeyJqNI4hwRWpkDm3UaqzynhcqKf6XxT4uBUKgWK4ZMhKM3uHpmKsouqbmBLjUvJyV4Ur5rDo/s1600/newphone.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMcr7TBcPbJhjUc2rsqUAUZeXe9wfjqVX11lcnB3e1GT1bRzl50vpuAArSmyL_0hw_VMSgeyJqNI4hwRWpkDm3UaqzynhcqKf6XxT4uBUKgWK4ZMhKM3uHpmKsouqbmBLjUvJyV4Ur5rDo/s1600/newphone.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I just gave him his new Iphone</td></tr>
</tbody></table>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2Lp4jRg3iJYZCI1f5FlXiXWEMbqNKnI_4ryR3Bv9-dwzOI0qJpGrFGzjMAeqXWg3ZMvJH4X9tkG7PPbwnmMZmprjHB4fVEsuKADesEJ09iqRrLgpTMwNCR-DVTr_pGDFe12PHumV0-fDm/s1600/relaxingmollie.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2Lp4jRg3iJYZCI1f5FlXiXWEMbqNKnI_4ryR3Bv9-dwzOI0qJpGrFGzjMAeqXWg3ZMvJH4X9tkG7PPbwnmMZmprjHB4fVEsuKADesEJ09iqRrLgpTMwNCR-DVTr_pGDFe12PHumV0-fDm/s1600/relaxingmollie.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mollie relaxing in the window</td></tr>
</tbody></table>
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<span id="goog_1236701887"></span><span id="goog_1236701888"></span><br />
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-79100870359676526142015-02-19T12:15:00.002-06:002015-02-27T13:38:41.282-06:00Recovery mode My goal in starting this blog was to keep people updated on Jeremy. Then I wanted to offer support to other families raising a child with chronic medical/developmental needs and to be an encouragement. I wanted others to see there is joy in life with GOD in even the most trying circumstances. My long term goal was to eventually write a book about living in Jeremy world, which is where I got the title, Welcome to Jeremy World. I want it to be about Jeremy's world, I don't want to box cut him to fit into the world but the other way around. This seem to be a good place to gather my thoughts and eventually get my contents. Then GOD sent us the side-kick, the Mulley cat so I changed the blog and added including Mulley (her name is Mollie but that is how Jeremy pronounces it) remember this is about Jeremy world. I then started to ponder writing a series of children's books with these 2 funny characters because there isn't much "Normal" in this world and I think people forget that. I however am constantly reminded of it because again I live in Jeremy world including Mulley. I'm not sure which direction GOD is leading me so I continue to blog. <br />
<br />
Jeremy got really sick a few weeks ago, but he is in full recovery mode. He started running a high fever, we checked him for flu, UTI and both were negative. He stayed home from school for a day, but played, acted like himself, so the next day he went back to school. We had a few nice spring like days so he played outside. Thursday morning he woke up with yet another high fever, that seem to have a vengeance. Jeremy was maintaining his oxygen and heart rate, but Cyrus felt since his fever was back we test needed to be ordered. We did a chest X-ray, CBC and blood cultures. Jeremy's nurse was scheduled to be at the house until midnight so I was able to get some sleep. Jeremy started about 1am, with high fever, couldn't maintain his saturated oxygen levels, he was working hard to keep it between 88 -90 on 2.5 liters of oxygen and if he took his nose cannula off (which he does at times) he dropped to 73 and was taking him a while to get back up. Jeremy is on oxygen 24/7 so we have it at home, plus we do continuous pulse ox at night. I was monitoring him closely and knew what to watch for. I can tell you, he scared me many times, as a mom of a child with chronic health conditions my son keeps me grounded and makes me realize how fragile life can be. I was scared, scared that Jeremy might not survive this sickness and that he was going to take his last breathe. I watched him like a hawk from 1am to 6:30am and was exhausted. Jeremy finally started maintaining his oxygen at 93, so I turned it down to 2 but left it there to give him a rest. The results where viral pneumonia, elevated white blood count and strep, blood cultures were coming back negative. We seen Cyrus partner that afternoon, she started an antibiotic and asked if we wanted to be admitted because he was there. I was trying hard to keep him out of the hospital but I was also on the fence, exhausted, afraid of another repeat night and me rushing him by ambulance to the ER. I opted for us to go home, where I knew he would be comfortable. Jeremy did much better that night, fever broke, he was maintaining his oxygen at 93 on 2.0 and he slept soundly. He did stay home from school for 2 weeks, but is back to his baseline. <br />
<br />
If he ever requires 3 liters of oxygen for more than 30 minutes his <span style="font-family: "Calibri","sans-serif"; font-size: 11pt; mso-ansi-language: EN-US; mso-ascii-theme-font: minor-latin; mso-bidi-font-family: "Times New Roman"; mso-bidi-language: AR-SA; mso-bidi-theme-font: minor-bidi; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin; mso-hansi-theme-font: minor-latin;">Pulmonologist </span>says he needs to be in the hospital so they can give him some assistance, which would mean he would need to be put on the vent, to give him lungs/heart a break.<br />
<br />
I was driving to Muskogee and that was my first quiet time that week to where I can sing out to God, worship him, and seek his face. It's like GOD is starting to teach me compassion and mercy, he extended it to me and how I need to extend it to others. The fact that I have this amazing Grace. I have my total faith, trust and life in GOD and I know at the end of my life when I stand before God, that I WILL HAVE HAD EVERYTHING BECAUSE I HAVE GOD. I also know God has plans, reason beyond my comprehension and I won't understand them all, but I don't have to because I have my faith in GOD.<br />
<br />
Here are a few pictures of Jeremy world.... <br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEieDrOryr-TWpURTXupaZ6Fxj8QyFSvXdG4lClzYKkJ2MoBNcpvXe6z2_nEn3jDupHMW3SQHRLpzqe6RUiWck1IFLqXzLrbrCa34sb20qDFlFiwtSvb8yRSjoirLiLJhyYPZ0YlU9A_Rval/s1600/1964822_10203056651768733_49012377275317875_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEieDrOryr-TWpURTXupaZ6Fxj8QyFSvXdG4lClzYKkJ2MoBNcpvXe6z2_nEn3jDupHMW3SQHRLpzqe6RUiWck1IFLqXzLrbrCa34sb20qDFlFiwtSvb8yRSjoirLiLJhyYPZ0YlU9A_Rval/s1600/1964822_10203056651768733_49012377275317875_n.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Beautiful Sunrise, waiting on bus<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1Bpus2HnRO0t8gWcitLs2OW6tT3K6vGOyW1cet_nfkeqJoyMECNBfNrEctXMDuTr-HU6FZU5Oc1Y26lSpSjP111OcwZQuNaD1ufOZ7_hJHeXBDOMQaxe-F1MPRoCUt0z3vqJ2CSa_sBwr/s1600/10273798_10202997986502138_6930576566497162387_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1Bpus2HnRO0t8gWcitLs2OW6tT3K6vGOyW1cet_nfkeqJoyMECNBfNrEctXMDuTr-HU6FZU5Oc1Y26lSpSjP111OcwZQuNaD1ufOZ7_hJHeXBDOMQaxe-F1MPRoCUt0z3vqJ2CSa_sBwr/s1600/10273798_10202997986502138_6930576566497162387_n.jpg" height="200" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mollie enjoy the spring weather</td></tr>
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIq_gdWKoTvLj7NhKYXhTBP47RkTIF_utMI0TQpwqlIIP2bIMLbOSqUl1mvkESX60ANAIjIOLT5IzTtfJss_I96nY0ns1katMJu7-9-PT8_fDFVT02ysFPu65TRONsc_yAsgYdtKUNL5JX/s1600/10297786_10203055161771484_6090258081755381158_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIq_gdWKoTvLj7NhKYXhTBP47RkTIF_utMI0TQpwqlIIP2bIMLbOSqUl1mvkESX60ANAIjIOLT5IzTtfJss_I96nY0ns1katMJu7-9-PT8_fDFVT02ysFPu65TRONsc_yAsgYdtKUNL5JX/s1600/10297786_10203055161771484_6090258081755381158_n.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">A tired boy, ready for bed</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQBhtbwqA-HD8tA0MVwywiCFgNoG2rfNxfk5CQScY5kb2gRnRPuaNbUQWIh3L2XfPegXP2GGahIlpuUR-64U9Ms28gIVkb5QnGC5b22gbgcR_sWNyP_ZDGAz6cOOqkhnj3Vp6rtedGgLdk/s1600/10407826_10203194475534241_147223088768697839_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQBhtbwqA-HD8tA0MVwywiCFgNoG2rfNxfk5CQScY5kb2gRnRPuaNbUQWIh3L2XfPegXP2GGahIlpuUR-64U9Ms28gIVkb5QnGC5b22gbgcR_sWNyP_ZDGAz6cOOqkhnj3Vp6rtedGgLdk/s1600/10407826_10203194475534241_147223088768697839_n.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Cat in a box<br />
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQfuN2_AltF08IcMOD94W0RCv6CpsQPOa9MAuJQbLlvqzWOgu4e5y2jNe1AwHuNn2yZA5dY8YztV9mguDsPNL40syge2OKMiDrxtYiT6l_MhGmb1BWOMLlGch3U2zlWvIWnt0QPBM1V-lM/s1600/10488049_10203188831633147_6396579707835289866_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQfuN2_AltF08IcMOD94W0RCv6CpsQPOa9MAuJQbLlvqzWOgu4e5y2jNe1AwHuNn2yZA5dY8YztV9mguDsPNL40syge2OKMiDrxtYiT6l_MhGmb1BWOMLlGch3U2zlWvIWnt0QPBM1V-lM/s1600/10488049_10203188831633147_6396579707835289866_n.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Finally feeling better </td></tr>
</tbody></table>
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="clear: right; float: left; margin-bottom: 1em;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgeqii9W1OqASKgJkYX3cumDZ8Abwl5UmOY6NRzHNamENZVOvFtZK9MrE3SXFEx0JZ049lN-kpXmyUHB4t1mExNrI_NuuDPxxq8kUmB1Z5inxTCG-5mUrr6NUJ1cSYiy9PLPHttSd60s6X9/s1600/10881565_10202891649723785_4819761734704911897_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgeqii9W1OqASKgJkYX3cumDZ8Abwl5UmOY6NRzHNamENZVOvFtZK9MrE3SXFEx0JZ049lN-kpXmyUHB4t1mExNrI_NuuDPxxq8kUmB1Z5inxTCG-5mUrr6NUJ1cSYiy9PLPHttSd60s6X9/s1600/10881565_10202891649723785_4819761734704911897_n.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">To much time together</td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjP4_zpsZP69M6jk92qACrBGqsDmj6YdoGm_hAhdHeGXHHja4J4pInlEDQZJ34Xk3TqPTcxm5kvm4Wd-N7W9JZrZqlCe1ZSiVs6nZn6VdxxCRYPMCjvCs-N5-nFUcM9IhOs6i0iKtAZH8Xn/s1600/10615551_10203211722165396_7935418258804386835_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjP4_zpsZP69M6jk92qACrBGqsDmj6YdoGm_hAhdHeGXHHja4J4pInlEDQZJ34Xk3TqPTcxm5kvm4Wd-N7W9JZrZqlCe1ZSiVs6nZn6VdxxCRYPMCjvCs-N5-nFUcM9IhOs6i0iKtAZH8Xn/s1600/10615551_10203211722165396_7935418258804386835_n.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mollie watching it snow<br />
</td></tr>
</tbody></table>
<br />
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhIWWfTon1sDQEUVlAFhCL2gPkeYfwbqDr_4RPjLNE6GBY8kA17vkjrpNopQJCdIuPOXZmTxNKhTmbM-eDkL7_ZuTdf_9ZQkfdGt-Ju6XvYM5xuye9hyphenhyphenhCFCcQ8dWAp4ZbqOVL4zEhQofog/s1600/10897970_10202866769741801_6601031204396815049_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhIWWfTon1sDQEUVlAFhCL2gPkeYfwbqDr_4RPjLNE6GBY8kA17vkjrpNopQJCdIuPOXZmTxNKhTmbM-eDkL7_ZuTdf_9ZQkfdGt-Ju6XvYM5xuye9hyphenhyphenhCFCcQ8dWAp4ZbqOVL4zEhQofog/s1600/10897970_10202866769741801_6601031204396815049_n.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mollie in a box</td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_7HHF8vqWMYXiIbzf0ATxGHKWDIpiM73mbYRQMBQum7JFnXlH5Ii_0c7vEylU1bDmxf0_BVhCX3TfqJmJE7XYIWlDmDkBxqOtc-GoafawicSw87UuK4Iep9oT5y0oDg4qJtqpI4kb2XCN/s1600/10915190_10202906438253489_625964756688449160_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_7HHF8vqWMYXiIbzf0ATxGHKWDIpiM73mbYRQMBQum7JFnXlH5Ii_0c7vEylU1bDmxf0_BVhCX3TfqJmJE7XYIWlDmDkBxqOtc-GoafawicSw87UuK4Iep9oT5y0oDg4qJtqpI4kb2XCN/s1600/10915190_10202906438253489_625964756688449160_n.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Ready to pounce on Jeremy</td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkvvcjcUE8tYEVBXqNxTMk1JpyYutiwGYIu0U8ej_MKNE_nYITdQqMUzBmG9k-An45Zji_c71xsLyL7ehNG3-R_sb4xJ-fS_3ZCdMTETdXzhN61uGWWCvyT3_Y6AQAit_ra7T7umGzxT9O/s1600/11026236_10203215085849486_3904196039870308125_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkvvcjcUE8tYEVBXqNxTMk1JpyYutiwGYIu0U8ej_MKNE_nYITdQqMUzBmG9k-An45Zji_c71xsLyL7ehNG3-R_sb4xJ-fS_3ZCdMTETdXzhN61uGWWCvyT3_Y6AQAit_ra7T7umGzxT9O/s1600/11026236_10203215085849486_3904196039870308125_n.jpg" height="200" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Ready for a break <br />
</td></tr>
</tbody></table>
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Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-74115515311360603442014-12-31T15:12:00.001-06:002014-12-31T15:12:31.258-06:00End of a GREAT Year !!!!!Well here we are again, December 31, 2014, once again getting ready to welcome another New year. I reflect back over the past year and highlights. <br />
<br />
I'm still blessed with my wonderful job at OG&E, will be celebrating 24 years in March. The year started in January with me learning a new process in the way my job as a scheduler was done. It also came with a new boss, and many new co-workers. It was all a good transition. I continue work with the Oklahoma Family Network, which I attribute it to also being my therapy, I've met many new families this year that always bless my life. <br />
<br />
We were due our 6 month Private duty nursing review the end of January and ended up having to file an appeal as we were denied nursing, and I felt that Jeremy's health had remained the same. Jeremy like normal had his own agenda, and about the time we were awarded our private duty nursing back within the month Jeremy's health was taking a severe curve down. He had some freaky episode, we assume a seizure that took him 45 minutes to regain his mobility. He then started getting sick frequently, out of breath and just not tolerating much of life, we started to notice blue fingernails and with the month of April we added a new specialist to our already long list, Dr. Walters, Pediatric Pulmonologist. Jeremy now requires 1 liter of oxygen 24/7 through a nose cannula, he does good but still has time that he will desaturated. He also requires periodic pulse ox checks and continuous monitoring at night. Jeremy has stayed healthy since that point, his last UTI was in June. We have had lots of staff changes this year for Jeremy, but replacements have all been good and I try to keep an open mind. Jeremy got to attend a weekend camp, Camp Barnabas, and he did great, had such a great time. I have already enrolled him for the summer camp that is a week long. Jeremy's spine does continue to progress but no plans for surgery, it's a tough surgery and will produce some of it's own issues. <br />
<br />
We continue to have our crazy cat, Mulley, she is fun to have around, does the silliest things. <br />
<br />
We continue to be blessed with our church, Sapulpa Bible Church, the people we attend with, the pastor, worshipping GOD in songs and preaching of his word. GOD really started teaching me, how do I respond to the trials in my life and I want people to see God in my life, point them in his direction, this life is temporary and I need to be more concerned with eternity. I realize that so many times people don't have GOD, they are having a bad day and I need to exhibit more compassion. I'm not where I was but I'm not where I need to be. God search me and try me. <br />
<br />
We normally start out the new year with spending the night at Granny's, but with Jeremy being on oxygen it's really hard to carry all his equipment with us and easier to stay at home, so that is where we will bring in the New year. <br />
<br />
Here are a few pictures of the craziest in our house.. <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqIetRxy1JtuwTT708-s9i1EZo8bY8kCf_c4Hj2kM6GJJx76QEM2lWxmPxfq0beatiEZu2OlsIY7VdClANLyGt4IJnSe0xNn-uDAhUEtnG098U8EazgNVxZhfmUNIRgGb7YoZ09lORTvPp/s1600/Sapulpa-20140308-00602.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqIetRxy1JtuwTT708-s9i1EZo8bY8kCf_c4Hj2kM6GJJx76QEM2lWxmPxfq0beatiEZu2OlsIY7VdClANLyGt4IJnSe0xNn-uDAhUEtnG098U8EazgNVxZhfmUNIRgGb7YoZ09lORTvPp/s1600/Sapulpa-20140308-00602.jpg" height="240" width="320" /></a></div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-70450506100151311772014-10-10T12:39:00.000-05:002014-10-10T12:40:32.204-05:00The Lord is my rock & fortress, in whom I will trust... Psalm 18:2<span lang="EN" style="font-family: "Times New Roman","serif"; font-size: 12pt; mso-ansi-language: EN; mso-fareast-font-family: "Times New Roman";"><span style="color: white;">I was asked recently, did your life turn
out like you had planned. <span style="mso-spacerun: yes;"> </span>I can say with
all confidence and praise to God, no it turned out better because it was God’s
plan, Jer 29:11, and trusting in grace alone, through faith alone, <span style="mso-spacerun: yes;"> </span>through Christ alone and Grace extended. <span style="mso-spacerun: yes;"> </span>Is my life going great, NO, but I can once
again say with all confidence and Praise to God, it is well with my soul.....<o:p></o:p></span></span><br />
<br />
Jeremy has managed to stay healthy, his last urinary tract infection was in
June and he has fought off a couple of illness.<span style="mso-spacerun: yes;">
</span><span style="mso-spacerun: yes;"> </span>We went to see Dr. Dan in June,
and he wants to continue to watch and allow him to progress and I’m in total
agreement.<span style="mso-spacerun: yes;"> </span>The time we fix J’s spine
will be when I say it's time. <span style="mso-spacerun: yes;"> </span>I hate
that I will have to make that decision for Jeremy and it will be a tough one. <span style="mso-spacerun: yes;"> </span>I know the risk, the surgery could take
Jeremy's life, more than likely leave him totally not mobile with very little
chance to regain lost motor skills and that will be the hardest thing for
Jeremy. <span style="mso-spacerun: yes;"> </span>Jeremy isn't where he was before
surgery and he's not where he was at after surgery but he can access his
environment and that makes Jeremy happy. <span style="mso-spacerun: yes;"> </span>I have decided to continue on with what we are
doing, he's doing well with the nose cannula oxygen he is on, it was a tough
transition but we’ve adjusted and he’s doing well.<span style="mso-spacerun: yes;"> </span>It will be a decision of quality/quantity of
life decision. <o:p></o:p><br />
<br />
Jeremy is up to 65 pounds, and grew 2 inches this past year.<span style="mso-spacerun: yes;"> </span>He started having some occasional episodes
where his heart rate drops below 50 when he goes into a deep sleep.<span style="mso-spacerun: yes;"> </span>He also throws in an extra heart-beat and
diagnosed with Premature Atrial Contracture.<span style="mso-spacerun: yes;">
</span>The sleep study results showed that he does over all good at night, his
movements they feel are neurological.<span style="mso-spacerun: yes;"> </span>When
we see Dr. Miller we will discuss that issue.<span style="mso-spacerun: yes;">
</span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><o:p></o:p><br />
<br />
Jeremy started the 9th grade and loves it, he got a new teacher and
classmates.<span style="mso-spacerun: yes;"> </span>He turned 15 on August 9, we
celebrated with a party at the bowling alley, for family and some of Jeremy’s
friends.<span style="mso-spacerun: yes;"> </span>He has developed this really,
funny, belly laugh, which he will just laugh at everything.<span style="mso-spacerun: yes;"> </span>He cracks everyone up.<span style="mso-spacerun: yes;"> </span><o:p></o:p><br />
<br />
It’s been a great fall so far, nice temperatures, we are just living life in
Jeremy World.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span>This weekend it is time to drag out and
decorate for fall, our pumpkins, scarecrows, Halloween.<span style="mso-spacerun: yes;"> </span>Mulley, the comical cat is doing great.<span style="mso-spacerun: yes;"> </span><span style="font-family: "Calibri","sans-serif"; font-size: 11pt; mso-ascii-theme-font: minor-latin; mso-bidi-font-family: "Times New Roman"; mso-bidi-theme-font: minor-bidi; mso-fareast-font-family: Calibri; mso-fareast-theme-font: minor-latin; mso-hansi-theme-font: minor-latin;"><o:p></o:p></span>Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-79373035722080539402014-04-25T11:16:00.003-05:002014-04-25T11:17:12.797-05:00It is a comical life, either laugh or cry but seek the Lord<div class="MsoNormal" style="text-indent: .5in;">
Oh <span style="text-indent: 0.5in;">believe me between my crazy son and
his funny antics or the Mulley cat who found us, it is a comical life and you
either laugh or cry, sometimes do both, but always, “Seek the Lord and his
strength, seek his face continually.” 1 Chronicles 16:11. I have often said, I'm going to write a book, someday and of course I want it to be all for the glory of GOD and I think I found my title that fits us and I like...</span></div>
<div class="MsoNormal" style="text-indent: .5in;">
<o:p></o:p></div>
<br />
<div class="MsoNormal" style="text-indent: .5in;">
It is like the end of January the
“change” button for our life was hit. My job at OGE, changed, I gained
another district, but GOD blessed me with even more amazing co-workers, my job
became quite crazy there for a while as our company totally implemented a new
way that we do business. I gained a new boss, new leaders in our district
and all I can say is Thank you GOD for them blessings I received. The
same time Oklahoma Health Care Authority decided Jeremy no longer qualified for
private duty nursing, although many times my comments to them were, “really”,
“seriously”. We filed an appeal on March 25, and just found out yesterday
that our nursing stays intact. Then in the meantime, my son decided that
he was going to have some sort of episode that just totally whacked him out, 45
minutes to regain mobility, still regression from that episode, he was so sick
one weekend with some unknown illness, he ran 103 temp and didn’t move off the
bed from Friday, through Sunday, he really had me scared. Then if that
wasn’t enough, he decided he wouldn’t keep his oxygen level up and went on
nasal cannula oxygen. </div>
<div class="MsoNormal" style="text-indent: .5in;">
Jeremy cracks me up when he is telling on Mulley,
It’s ok she is just looking out the window, “Alwrighty thn”. He says the
funniest things at just the right time. The other day coming home from my
mom’s house, he had so much fun, we pass Church’s chicken, which we eat there
more than we should, he says, “wnt to go” turn around he’s pointing at
church’s. My favorite will always be, “OK MUMA” <o:p></o:p></div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-88354377096447672282014-04-22T15:53:00.002-05:002014-04-22T15:54:25.583-05:00Joy in our Journey.....<div class="MsoNormal" style="text-indent: .5in;">
We have had some amazing spring
weather and we are loving it. <o:p></o:p></div>
<div class="MsoNormal" style="text-indent: .5in;">
I was able to attend the
Extraordinary women’s conference in Tulsa, the title was, “Joy in our Journey”
I needed that then and I need it now. <o:p></o:p></div>
<div class="MsoNormal" style="text-indent: .5in;">
Jeremy continued along the path of
indications of an UTI, we did chest X-ray, more blood work and nothing was showing
up. We went for our appeal with OHCA on
March 25, I was able to prove some points but I still haven’t heard if they are
going to file an appeal, it’s been a long, frustrating process and one that I
get no communication from OHCA. <o:p></o:p></div>
<div class="MsoNormal" style="text-indent: .5in;">
Jeremy started to have periods
where the bottom of his finger nails would turn, blue, purple. We took pictures and sent to Cyrus, he ordered
a pulse ox and said when that happens to check his levels. We would do that and it was 90ish. Jeremy started his normal weekly run a fever,
sick so we went to see Cyrus in the office, and while we were there he hooked
him up to a pulse ox and watched it go from 92, 89, lowest it got was 80 and
back up, and down. He put him on nasal cannula. We seen our cardiologist and his heart is
working as good as the day it was repaired.
His EEG showed that he has seizure activity but it’s comparable to the
last EEG we did in 2011. We now have an
appointment with the pulmonologist on April 30 in hopes that will provide us
answers as to why this happened, or what is happening with J-man. He does wear his oxygen, pretty good but has
moments he doesn’t want it on and you have to fight with him. He stayed home 2 weeks while we got adjusted
to needing the oxygen. He returned to
school last Tuesday and is doing good. He
is sleeping better with the oxygen, so that is a plus. <o:p></o:p><br />
Jeremy continues to say his words, bye momma, I want to help, I want that, he is a funny boy and cracks me up...</div>
<br />
<div class="MsoNormal" style="text-indent: .5in;">
Today, April 22 is our 20<sup>th</sup>
day since the appeal, I’ve contacted OHCA and still don’t know if they are
going to appeal the judge’s decision. I’ve
let them know about Jeremy’s recent health changes, so even if they do appeal
he now qualifies all on his own with his recent health changes. <o:p></o:p></div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-55415809424265482022014-02-27T15:47:00.001-06:002014-02-27T15:47:22.913-06:00What’s up with that…<div class="MsoNormal">
Jeremy’s
favorite phrase of words have become my life, think I’m officially name my life
a roller coaster while hanging upside down.
We had our yearly review for nursing, nothing exciting or so I thought it
was just his yearly review, nothing has changed for him but our new caseworker
wants to cut Jeremy’s nursing, from 12 hours 7 days a week to 8 hours 5 days a
week for 60 days and then nothing. The
caseworker called me on January 30 to tell me this, I was waiting for my car to
get finished and I argued with her, pleaded with her, cried for her and finally
a no-brainer filed an appeal. I think
she just overlooked so much into Jeremy’s care.
I am waiting on our court date and gathering my data. <o:p></o:p></div>
<br />
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Then the
very next day, Jeremy crashed and he crashed hard. I had went to my uncle’s funeral and on the way home
received a phone call from my home nurse that Jeremy was vomiting, running
fever, chilling. We did a urinary
culture to check the obvious, Cyrus started an antibiotic that Friday but Jeremy was so sick through the weekend, he finally got off the bed on
Sunday. The week before he had a seizure
in the bathtub, and the nurse had to lift him out and it took him over 45
minutes to regain his mobility. Jeremy
stayed home most that week because he was so tired, and he was really starting
to scare me. We went to see Cyrus the
next Friday, he did some blood work, urine culture all came back good except
Jeremy’s thyroid was 4 times lower than what it should be so that would
attribute to him being so tired. He got
better and then by Sunday he was back to running a fever, vomiting, a repeat of
the week before but Cyrus felt that was viral.
We did a Kidney US and it showed his left kidney is obviously smaller
than the right, so. We know with FG
syndrome they can have kidney issues, but Jeremy hasn't, but we just started
checking his kidney’s due to bladder issues, so it could be that his left is genetically smaller than the right, the spine curves in that direction could be preventing growth. Jeremy’s thyroid came down very easily, his urine culture continues to
look good and he’s improving with energy.
We will be doing a Uro-dynamics study to check bladder and go from
there. We had an appointment with our
Neurologist and he agrees that some of the issues we saw were along the line of
seizure activity so we will repeat the EEG. This was all in the month of February. </div>
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<br /></div>
<div class="MsoNormal">
We have had cold winter, more snow, but it's not been too bad. We are expecting another round of cold, winter precipitation Sunday, Monday and Tuesday.....</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<o:p></o:p></div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-73125102017564535072013-12-31T15:06:00.004-06:002013-12-31T15:06:58.273-06:00Here's to another Great year....<div class="MsoNormal">
Here is to the end of another great year!!!!!<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I started vacation on Friday, Dec 20, but just like Oklahoma
with our wild weather we got hit with an ice storm. I got called in to work and vacations
cancelled. I ended up working 8 hours on
Saturday, 13 hours on Sunday, and a few hours on Monday. I then started vacation and since I
simplified our holidays we were able to just enjoy the time, took lots of
naps. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
As I reflect over the past year we had some pretty significant
changes in our life. I don’t think
anything could have prepared me for the loss of my earthly dad, the man who always
had a presence in my life, I’ve known my entire life was now gone. My brother called me on Thursday, Jan 10 and
dad peacefully took his last breath approximately 3am on Saturday, January
12. I have to say that during that time
I never remember physically having a sense of comfort in my life. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
The other big change, after 5 years of a legal separation is
our divorce was final on January 15. I
have primary custody of Jeremy but his dad is allowed to see him when he
wishes. <o:p></o:p></div>
<div class="MsoNormal">
I continue my job at OG&E, the job continues to be a blessing;
it provides a good income, great health insurance. We went through some significant changes as
teams would be formed to determine job duties and titles. I assumed some of the Shawnee Scheduler
duties as part of my daily duties. When
I went on vacation in June, they moved Shawnee to our Metro Oklahoma City and the
Scheduler in Muskogee retired. I am now
Muskogee/Sapulpa Scheduler, I absorbed her duties. I have been busy, learning new area and people. It has been great, I do love being busy. I continue to be a Patient Navigator with the
Oklahoma Family Network, which has always been my mission and passion to help
families who have children with special needs.
</div>
<div class="MsoNormal">
<o:p></o:p></div>
<div class="MsoNormal">
Jeremy continues to remain strong and make steady
improvement. Jeremy did miss the last
week of school and I was disappointed because he missed his 7<sup>th</sup>
grade graduation and he was strong enough to use his stroller to walk across
the stage. I think Jeremy not getting to
go and then knowing my dad wouldn’t get to see him, was upsetting. Memorial day, it happened as quick as it
could and you’re always told it can. We
had a relaxing morning, cool weather, Jeremy outside playing. We come into the house; he had a seizure and fell
back. To the ER we go and surgery was
scheduled for the next day as his tubing came loose from the shunt. The good news is we still have the same
shunt. It did take him a little longer
to recover, but the rest of the summer was uneventful not even an UTI. We took a 3 day mini-vacation, went through a
drive through safari, and had fun relaxing in the hot tub/pool at the
motel. Jeremy started Jr. High and is doing well,
they love him and he’s Mr. Social boy anyway.
I have found he is quit a little cut-up.
It was disappointing to find the scoliosis has progressed and for the
first time Dr. Dan could see it getting into the left lung on the X-ray.</div>
<div class="MsoNormal">
<o:p></o:p></div>
<div class="MsoNormal">
We grew as a family, and now have Mollie the cat who is
quite honestly has lot of the same traits as Jeremy; they make a great team and
life interesting. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
We continue to attend Sapulpa Bible Church and are blessed beyond words to find this fellowship of believers, to worship in song and word with such a great body. We love them all. </div>
<div class="MsoNormal">
<br /></div>
<br />
<div class="MsoNormal">
We say Good-bye to 2013 and we welcome 2014, God in our
lives, our trust and faith in him. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Jeremy and I will be celebrating in our usual way, out at Granny's spend the night and more than likely be in bed by 8pm....</div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-50326934098381020552013-12-17T14:15:00.002-06:002013-12-17T14:15:38.244-06:00Certain things about tomorrow I do not understand, but I know who holds the future and I know he holds my hand....<div class="MsoNormal" style="text-indent: .5in;">
We went back to see Dr. Dan, on
December 10 and I have to say it was nice to just have a 10 hour day verses a 2
day trip, especially with the busy time of the year and a bonus because we can
make it in under 12 hours our home health nurse was approved to go with us, so I
focus on driving and Jeremy was able to stay on target with all his medical
stuff.<o:p></o:p></div>
<div class="MsoNormal" style="text-indent: .5in;">
We had a good visit with Dr. Dan,
he was impressed with Mr. J ability and motor use, he was showing off his
walker skills and even reverted to using a chair on rollers to get around the
office. The visit also produced some not
so great news, but news that I knew we would one day get because Jeremy’s spine
never allowed us to place the rods. Jeremy’s
curve is now starting to get into his left lung area, which goes along with the
news we received from our cardiologist this past summer that his heart is
showing to be compacted. Jeremy’s spine
is sensitive and just doesn’t do well with surgery. His blood pressure drops dangerously low and
his blood starts shunting to his internal organs to keep them going, so he loses
motor activity as well as 3 units of blood.
He then spends 3-4 days with an arterial line on total BP meds just to
get his to a normal level, then time being deep suctioned to keep the stuff out
of his lungs. January 28, 2010, was a
day of mourning for me, it forever changed our lives. GOD used that time to grow me in such a
painful way, learning is never easy. Jeremy
still can only handle 4 days of school and when he is tired or not feeling good
reality is, life slows down for us. That
is how I came up with the title to this post, I don’t always know about
tomorrow but the great news is the GOD who knows the future is the same one who
holds our hands.<o:p></o:p></div>
<br />
<div class="MsoNormal" style="text-indent: .5in;">
Here
are a few pictures of our Christmas decoration. I have to say, Mollie has had a blast with the tree, she likes to hide out behind it and when I pick up an ornament she jumps out and attacks you. </div>
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcMBZ7AYVfdt24Spz0w0tQPyuX7OidQdkQ-cG5FkB5nuoQkrTnJm2nqgb_dGZffM650Np_fIStfa2qdP1R1Xxx7g2HTuln6WbxZxAkVd7fa2yEk4le2kAWmNkpjz7XHNBm-CxuRuNF4uHf/s1600/Sapulpa-20131128-00425.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcMBZ7AYVfdt24Spz0w0tQPyuX7OidQdkQ-cG5FkB5nuoQkrTnJm2nqgb_dGZffM650Np_fIStfa2qdP1R1Xxx7g2HTuln6WbxZxAkVd7fa2yEk4le2kAWmNkpjz7XHNBm-CxuRuNF4uHf/s200/Sapulpa-20131128-00425.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The Battle, Mollie is too close </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiula4JY5RHG2zTHnxQPEXRrjc6fZQaL8mP722ScDk-Nfjf7WRkHnRGv9CD-NSde-5DVL0BXySn0Laf62w5CGet_X1jK2KIuq8_gB6zhtjJcKLBxmzFg6PjyPtlCyQXKdSDW4IqtLNVTvbg/s1600/Sapulpa-20131129-00427.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiula4JY5RHG2zTHnxQPEXRrjc6fZQaL8mP722ScDk-Nfjf7WRkHnRGv9CD-NSde-5DVL0BXySn0Laf62w5CGet_X1jK2KIuq8_gB6zhtjJcKLBxmzFg6PjyPtlCyQXKdSDW4IqtLNVTvbg/s200/Sapulpa-20131129-00427.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mollie stole the Grinch !!!!!<br /></td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOrrwcbO-08aNh560ZmSjLl2r45yL6gKJNGql1e44tKd0Bar2WvT4kUweY3WmezrskxMXU_BABmqau7lRL7XZe1pZo6tjhbF_3CUGGjcWC9lxwuf4vwHwpfAlbDHPnjis_evJEbEh13LIW/s1600/Shamrock-Heyburn+Lake-20131130-00431.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOrrwcbO-08aNh560ZmSjLl2r45yL6gKJNGql1e44tKd0Bar2WvT4kUweY3WmezrskxMXU_BABmqau7lRL7XZe1pZo6tjhbF_3CUGGjcWC9lxwuf4vwHwpfAlbDHPnjis_evJEbEh13LIW/s200/Shamrock-Heyburn+Lake-20131130-00431.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Thanksgiving day </td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaowTfU-e7mvbuqEn91C0gGZJajncA7oOolLqtIqtRuD7jfxJN_KWLRffFOH7bkyp0LYev9F4UjRMUxisIj4DZy3FktY2N0Cj6ttUR4ND32iV-iGJGi1xadi-cavnHA2plVPYin1sCREDN/s1600/Sapulpa-20131128-00422.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaowTfU-e7mvbuqEn91C0gGZJajncA7oOolLqtIqtRuD7jfxJN_KWLRffFOH7bkyp0LYev9F4UjRMUxisIj4DZy3FktY2N0Cj6ttUR4ND32iV-iGJGi1xadi-cavnHA2plVPYin1sCREDN/s200/Sapulpa-20131128-00422.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The tree when J and Mollie leaves alone</td></tr>
</tbody></table>
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<div class="separator" style="clear: both; text-align: center;">
</div>
<o:p></o:p><br />
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<br /></div>
Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0tag:blogger.com,1999:blog-3407492808918025277.post-70479867077311520402013-10-25T10:04:00.000-05:002013-10-25T11:17:20.668-05:00"Thanks be to GOD, which giveth us the victory through our Lord Jesus Christ."<div class="MsoNormal">
I have been slow on the posting, there have been changes in
our lives and we are adapting.<br />
<span style="text-indent: 0.5in;"><br /></span>
<span style="text-indent: 0.5in;">I am grateful and praise GOD over
and over for the awesome summer we had, we truly enjoyed it. Jeremy had great, dependable staff, he only
had 1 sickness. His staff took him on
some trips and he did great. The cat
known as Mollie has blended in well with our family and is a drama queen. Mollie has 2 meows, one, “I’m upset crying”
and the other is, “I need attention now”.
I took her in to get her spayed, </span>de<span style="text-indent: 0.5in;">-clawed and all her shots at the same
time, she did well. When I took her back
to get the stitches removed, she was trying to get out of the carrier and Jeremy
was trying to get her out so needless to say Jeremy was mad that I took her and
she cried all the way over there and back, really? </span><br />
<span style="text-indent: 0.5in;"> </span></div>
<div class="MsoNormal" style="text-indent: .5in;">
<o:p></o:p></div>
<div class="MsoNormal">
Jeremy
has adapted well to Junior High, it’s an all new school, teacher, kids. He likes everyone and they like him. They have given him the nickname Edward
Scissor hands, why? Because he has very
fast hands and can grab 15 things at once and if you don’t believe it try
taking him out of somewhere when he doesn’t want to go. He is also the only kid in his class whose
desk is turned backwards, why? so he can’t get what is in his desk. I love his sense of humor, so glad he has
one. <o:p></o:p></div>
<div class="MsoNormal">
<br />
One
night I formed a long string with fun sticks, Mollie had fun chasing it and Jeremy
had fun teasing her. It was comical to
watch them play. Jeremy is still
learning empathy but getting better. He
tends to treat her like a stuffed toy but somehow I have to believe she doesn’t
mind because she just lays around when she could escape. The cat named Mollie doesn’t like to be
alone, I figured she would love her carefree days of no one home, but when you
walk through the door she is ready for attention. Jeremy has learned a few of her tricks, he
now gets in the back corner of my closet and hides which is fine when Mollie
does it but for him this requires him taking all of my shoes out of the
closet. <br />
<br />
There
have been changes at my job, I am learning many new task as well as an entire
new area with new people. I got to spend
a week in Ft. Smith learning the new process which was neat to see how it will
be when we starting doing it the end of January. I did get a week break from
being mom and nurse, although I missed Jeremy it was a nice break. I got to meet up with a friend who I’ve worked
with for many years, we had dinner and then decided to go to a movie, it was so
much fun. I have a new boss and many new
co-workers but it’s all been a good transition. <br />
<br />
GOD is
once again molding me. I truly love our
Sapulpa Bible Church, I really love our worship time, the songs are so
uplifting and you can truly sense God’s spirit.
I love that Pastor Mike preaches what the bible says, he doesn’t do the
good fell kind of sermon and I’ve been challenged. I love our church people, how they are all
there for one common goal, that is to use their gifts for what God called them
to do, and to LOVE each other, and serve God. </div>
<div class="MsoNormal">
<o:p></o:p></div>
<br />
<div class="MsoNormal">
We are
enjoying the season of fall, we are having some cool mornings, days, rain and it’s
just been glorious. Here are a few pictures…..<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi2_J8MGFiouOb19wedh2FQhrcGbe7eb-fysyNPPc4heAKpMUzfnxwXbgyQJUr3PfUY4_3ADUo3KAfZQabZcCzJ8QAvKf_rLPgZWwR-e6vbzAKC1M-4RnFL06YC-CgL_5EieZ2ZzZDIPeHG/s1600/CAM00056.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi2_J8MGFiouOb19wedh2FQhrcGbe7eb-fysyNPPc4heAKpMUzfnxwXbgyQJUr3PfUY4_3ADUo3KAfZQabZcCzJ8QAvKf_rLPgZWwR-e6vbzAKC1M-4RnFL06YC-CgL_5EieZ2ZzZDIPeHG/s200/CAM00056.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">On a mission... Playground</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_AwjVsVYe7pZtJ7MTpgPx-oaLqWxBA_uhRYqeP3_epibl9P45ddMjSq7lSZKm8yhDOdtWxVpPjtj5wRjVEgZzfIntrbWdTK5vtv_PvMMcCJ3AEkBJOV6NIWU6GnSHtigmoAi3I3225euy/s1600/9888_10200254458955664_1866821852_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_AwjVsVYe7pZtJ7MTpgPx-oaLqWxBA_uhRYqeP3_epibl9P45ddMjSq7lSZKm8yhDOdtWxVpPjtj5wRjVEgZzfIntrbWdTK5vtv_PvMMcCJ3AEkBJOV6NIWU6GnSHtigmoAi3I3225euy/s200/9888_10200254458955664_1866821852_n.jpg" width="150" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Granny, Mollie and Jeremy</td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6Vsun48AhWeoTuZjdHuL3vmSJgp6O5pifli2Iqbn4RVsx3oTuAfiwpbq-v0TI9BhPPIQbQtg5ChtVg_UMwmQDJbJnm3a3htG-7D7ly5ivBZ7WzZK7q8aOi4eSf8XIJtIBJ69k2f6krBjm/s1600/1380208_10200368055395504_2134662040_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6Vsun48AhWeoTuZjdHuL3vmSJgp6O5pifli2Iqbn4RVsx3oTuAfiwpbq-v0TI9BhPPIQbQtg5ChtVg_UMwmQDJbJnm3a3htG-7D7ly5ivBZ7WzZK7q8aOi4eSf8XIJtIBJ69k2f6krBjm/s200/1380208_10200368055395504_2134662040_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">J- I have a cat I know how to play<br /></td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRvSkLEUDhlrkTJrGNEIs-zVLaPnps__ff0bi52o75RMDPr4NlFKhg0NB96UYvSni8BhQ6yPQCoTlRe55Qzo60Rl5xl_C2nx7aK2hSxcGskfzD8MLfvGmB3kgW2caKWpbs_5d0K5jEs0U1/s1600/1380426_10200467338397517_1808575465_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRvSkLEUDhlrkTJrGNEIs-zVLaPnps__ff0bi52o75RMDPr4NlFKhg0NB96UYvSni8BhQ6yPQCoTlRe55Qzo60Rl5xl_C2nx7aK2hSxcGskfzD8MLfvGmB3kgW2caKWpbs_5d0K5jEs0U1/s200/1380426_10200467338397517_1808575465_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The boy and cat- nap time</td></tr>
</tbody></table>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgB4dhCSNAY5EDfMDzhHVnygQ8xGsMjSfmt7hfo9MuHZ78jZ984DhW6zUyPNt7zl9j-VBDQ8vXu5W8K4RF1C7z8P0WU12Lxh5UR4fb7ey4p-PQmyOc1HjsBucFZSNGKhXywQPZjFR02jKwx/s1600/1383615_10200416089876336_1474857729_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgB4dhCSNAY5EDfMDzhHVnygQ8xGsMjSfmt7hfo9MuHZ78jZ984DhW6zUyPNt7zl9j-VBDQ8vXu5W8K4RF1C7z8P0WU12Lxh5UR4fb7ey4p-PQmyOc1HjsBucFZSNGKhXywQPZjFR02jKwx/s200/1383615_10200416089876336_1474857729_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Our decorations</td></tr>
</tbody></table>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtJedqqE_Vo7D-Wuc66HDpBauZmmgLsypV7gLJV8pNvjI3v_CE1dL-srTJrbM3JTSJNv23NG6ZyheCTa0K4I4Md9Le2LCB9lARKXjEVYVVgQB5mSFTgRV_mXiaaJqN1Xy56nKeMf1-gh4x/s1600/1383720_10200416088676306_430681351_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtJedqqE_Vo7D-Wuc66HDpBauZmmgLsypV7gLJV8pNvjI3v_CE1dL-srTJrbM3JTSJNv23NG6ZyheCTa0K4I4Md9Le2LCB9lARKXjEVYVVgQB5mSFTgRV_mXiaaJqN1Xy56nKeMf1-gh4x/s200/1383720_10200416088676306_430681351_n.jpg" width="200" /></a></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEibwdarqddsnErklRdsMKWFWDyr7On4WMN19iSoMJkjXkH0IllxFnI58osrdBot0XMPj6cWvpmSDhYN7dgPgStdSq8lJTJRSpCTz15ZJ9cP3xTfKsxywJXWl6-6SEbf7YkS7l77wGkUQqZM/s1600/1385480_10200416099796584_2070203441_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEibwdarqddsnErklRdsMKWFWDyr7On4WMN19iSoMJkjXkH0IllxFnI58osrdBot0XMPj6cWvpmSDhYN7dgPgStdSq8lJTJRSpCTz15ZJ9cP3xTfKsxywJXWl6-6SEbf7YkS7l77wGkUQqZM/s200/1385480_10200416099796584_2070203441_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Ohhhh, scary<br /></td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh29i-wugkJjRhPce-dl5T7tRFTRGpRKGpqi4bShL5xLYd4oaYoj0htJL0STv8C33QPA79I0BGaJdd17vBpw-ZSC8nr4MCjF6gAAHFqcoYcmWj_X-Xl2ZCDtRwzK2RS8gyr-38SBEC1JOAC/s1600/1393557_10200416091836385_1210348286_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh29i-wugkJjRhPce-dl5T7tRFTRGpRKGpqi4bShL5xLYd4oaYoj0htJL0STv8C33QPA79I0BGaJdd17vBpw-ZSC8nr4MCjF6gAAHFqcoYcmWj_X-Xl2ZCDtRwzK2RS8gyr-38SBEC1JOAC/s200/1393557_10200416091836385_1210348286_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Our fun yard</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvsLbq42vBprMiOihW1ZLjXNou-yREDfNGbSnTvqYLpgUqNX67wAd306SeL2JqhJB-mrh7l1NOfD9yOT-GVw4fUfSl9ksKtcmO0h88UmDSLNsts1sOQnWZX3iR-KhyphenhyphensFow2w3oGQE6HkUN/s1600/1395920_10200471395458941_1749569525_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvsLbq42vBprMiOihW1ZLjXNou-yREDfNGbSnTvqYLpgUqNX67wAd306SeL2JqhJB-mrh7l1NOfD9yOT-GVw4fUfSl9ksKtcmO0h88UmDSLNsts1sOQnWZX3iR-KhyphenhyphensFow2w3oGQE6HkUN/s200/1395920_10200471395458941_1749569525_n.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Zoo trip- J petting the goats</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiU65sDAPVlGS9lbeFc-LxyZUtOdOeGvULmbzIHNTx-zE9vfyhRT_i3ym0xE9Q88449qC6xdwoE8Du1CnNSjv5QOmy1R4X9xVtVcZazWqr0p-TGiJ_lDunmVqVtIPcEPdxqqXtmzg_fOfr5/s1600/IMG-20130822-00238.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiU65sDAPVlGS9lbeFc-LxyZUtOdOeGvULmbzIHNTx-zE9vfyhRT_i3ym0xE9Q88449qC6xdwoE8Du1CnNSjv5QOmy1R4X9xVtVcZazWqr0p-TGiJ_lDunmVqVtIPcEPdxqqXtmzg_fOfr5/s200/IMG-20130822-00238.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">1st day of Jr. High </td></tr>
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Lora L Robertshttp://www.blogger.com/profile/17654449829878915658noreply@blogger.com0