Joy in our Journey.....

We have had some amazing spring weather and we are loving it.    

I was able to attend the Extraordinary women’s conference in Tulsa, the title was, “Joy in our Journey” I needed that then and I need it now. 

Jeremy continued along the path of indications of an UTI, we did chest X-ray, more blood work and nothing was showing up.  We went for our appeal with OHCA on March 25, I was able to prove some points but I still haven’t heard if they are going to file an appeal, it’s been a long, frustrating process and one that I get no communication from OHCA. 

Jeremy started to have periods where the bottom of his finger nails would turn, blue, purple.  We took pictures and sent to Cyrus, he ordered a pulse ox and said when that happens to check his levels.  We would do that and it was 90ish.  Jeremy started his normal weekly run a fever, sick so we went to see Cyrus in the office, and while we were there he hooked him up to a pulse ox and watched it go from 92, 89, lowest it got was 80 and back up, and down.  He put him on nasal cannula.  We seen our cardiologist and his heart is working as good as the day it was repaired.  His EEG showed that he has seizure activity but it’s comparable to the last EEG we did in 2011.  We now have an appointment with the pulmonologist on April 30 in hopes that will provide us answers as to why this happened, or what is happening with J-man.  He does wear his oxygen, pretty good but has moments he doesn’t want it on and you have to fight with him.  He stayed home 2 weeks while we got adjusted to needing the oxygen.  He returned to school last Tuesday and is doing good.  He is sleeping better with the oxygen, so that is a plus. 
Jeremy continues to say his words, bye momma, I want to help, I want that, he is a funny boy and cracks me up...

Today, April 22 is our 20^th day since the appeal, I’ve contacted OHCA and still don’t know if they are going to appeal the judge’s decision.  I’ve let them know about Jeremy’s recent health changes, so even if they do appeal he now qualifies all on his own with his recent health changes.