An Amazing Season of Thanksgiving !!!!

We continue to live a glorious life here in Jeremy world, along with the crazy cat Mollie.    

I finally have a blog posting update of Jeremy World but first Thanksgiving. 

 I am forever and foremost graciously grateful & thankful for God’s sovereign grace & mercy, I’m thankful that he sought me, saved me from my wretched sinful soul that was not only  destined to hell but I deserve hell.  GOD is so patient & merciful with me and I don’t deserve that.  I’m graciously grateful that GOD is above all, always been here, before time, above all other gods, riches and he is the one true and only GOD. 

 I’m thankful for the parents GOD gave me and the glorious time I had with them.  I’m grateful for their love & support.  I’m grateful for the valuable life lessons.  I’m grateful my mom was a true Proverbs 31 women and lived that out and I was able to witness in her daily life.  I’m grateful my dad (whom I believe came to know God in his last hours) was tough on me but it was because he loved me. 

 I’m grateful and thankful for each of my 4 siblings, they were my first friends, enemies but the love we have for each other can’t be replaced.  I’m grateful for their spouses.  I’m grateful for my nieces and nephews.  They have always shared so much with me. 

I’m grateful that GOD chose me to be Jeremy’s mom, and has given me 20 plus years to experience an undeserving love from such a tender hearted boy, how Jeremy loves unconditionally and is always happy, most times when he doesn’t feel good.  I’m grateful for his shenanigans and how they make me snicker.

 I’m grateful for all the amazing staff that cares for Jeremy, how they care for him and adopt us as family.  They are an extension of our family. 

 I’m grateful that I get to work at OGE, the friends I have here, the benefits, my job financially supports my household. 

I’m grateful I get to work for the Oklahoma Family Network and provide support to so many families but how this supports my family.

I’m grateful for Sapulpa Bible Church, my church God provided for me, they are extended family where the true, solid preaching of God’s word is provided.  The support and with happy hearts GOD is served.    I’m grateful for the summer’s wicked weather because it brought Grace Community Church an entire new church family into my life, many new amazing friends, who love and serve GOD. 

 

An Update into Jeremy World:  We still have no genetic answer, still has low T-cells and the only treatment would be a bone marrow transplant but Jeremy is not a candidate he couldn’t tolerate the procedure.  Jeremy’s spine did progress again this past year, which would explain the increase in oxygen earlier this fall plus now leading to GI issues.  I am grateful that Tulsa got an amazing new Pediatric GI and that Dr. Michael Pickens was willing to take Jeremy on because Jeremy isn’t considered Peds.  Dr. Pickens, listened to my concerns and immediately ordered test and wanted to know all he could about Jeremy.  We did an Upper GI scope, barium enema and an Esphogram.  Jeremy’s esophagus is slow, due do the curvature of his spine food goes down slower, he has severe Gastritis, 9 biopsies were collected and all confirmed acid reflux.       

We have had a busy year.  I was honored and thrilled to be present to welcome Dawson Gaches into our family on January 15.  He is my first Great-nephew and mom and dad would have been proud Great- Grandparents.    

I attended a Heartland Genetic Advocate meeting in Dallas for a few days in February, a quick flight one day, conference, and late flight back.  I gained some new knowledge.  I was so grateful to have the opportunity to meet up with my friend Laurie Garza from Allen, Texas, she was the first parent I met when Jeremy was diagnosed with FG syndrome and we’ve remained friends through our boys growing up. 
 
May I attended the Family Voices conference in Washington, DC and that was an amazing conference.  I was pretty excited to be at our Nation’s Capital, see the White House, Washington Monument, Lincoln Memorial, Arlington Cemetery, our Nation’s Capital, supreme court, meet Senator Lankford.  It was nice to be spend time with 3 of my co-workers with the Oklahoma Family Network.      

Summer came and we took a vacation.  I took Jeremy to his 5^th year of Camp Barnabas on Sunday, he loved it and would have returned.  I then started my vacation with no agenda, no planner and just got to be spontaneous.  I flew to Jacksonville, FL to meet my friend Denise and we drove to Savannah, GA to spend the week.  It was a great week, lots of interesting historical sites, some interesting places to eat, seen a cannon being shot, climbed one of the 10^th tallest Lighthouses at Tybee Island and we even drove around Bonaventure Cemetery.  There was much time to relax, talk, I got to do my bible study every evening with no interruptions, got some rest and just an amazing week. 

I will end with a verse from 1 Corinthians 10:31, " Whether, then you eat or drink or whatever you do, do all for the Glory of God".  This is what I am striving to do in my life with all I do.  I'm grateful that my Pastor has been teaching through 1 Corinthians.