We went back to see our home away from home, we had a great trip, Jeremy traveled very well, was very happy, content, talking up a storm and even took a nap on the way there and the way home. We seen Mike and got measured for a new TSLO brace, went to the hospital to visit all of our friends, we even ran into Dr. Dan and visited with him, Jeremy was the master of attention in the PICU, with Elizabeth and Steph and was having a blast. Dr. Dan got to see J playing, being happy in someplace that wasn't an office visit. J was just very verbal and just had lot to stay about everything. We did X-rays and Dr. Dan feels that the upper spine is more than likely fused itself, the lumbar curvature looks to have progressed a bit but that could be the way he was sitting. This also doesn't mean that it won't progress or that we won't be discussing spinal fusion and the risk that will go with it. We got our story recorded for the upcoming radio-thon picked up our brace and headed home. The plan is Dr. Dan will check him again in 6 months, he wants to see how J does have the botox injections the middle of February.
Mr. funny boy everytime we would stop would try to unbuckle his seat belt and say, "I need out", it was so cute and cracked me up.
|J with Mike... We love him|
|Elizabeth brave letting J have her Iphone|
|J with Elizabeth and Steph|
|J with Steph|
|Mr. big radio man|