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Saturday, January 28, 2012

I need out....

One year ago today was honestly the worse day of my life, a spine surgery that was hopeful to go right went totally wrong and a look in a surgeon's eyes didn't prepare me for the words that would cut my soul. A day that was going to change my life dramatically for the worse.  GOD has used for good, turned it all around, taught me that trials are blessings in disguise and once again showed me a caring compassionate surgeon whose best interest is J, along with a hospital, town who supported us.  Jeremy's has healed and made a remarkable recovery, although still not where he was but there was also healing of my heart to come to an acceptance.  I will forever be grateful for our super-hero, Dr. Dan, Holly, MU Children's hospital staff, Kelsey, Kaitlyn, Corrine, Lauren, Amber, all the nurses, Pacale's Pals, Aleatha, Jackie, Julia, Heidi and the Town of Columbia.  I wasn't sure where we would be this time last year, but I LOVE where we are at, my attitude and only by the Grace of GOD am I here and have the acceptance.....

We went back to see our home away from home, we had a great trip, Jeremy traveled very well, was very happy, content, talking up a storm and even took a nap on the way there and the way home.  We seen Mike and got measured for a new TSLO brace, went to the hospital to visit all of our friends, we even ran into Dr. Dan and visited with him, Jeremy was the master of attention in the PICU, with Elizabeth and Steph and was having a blast.  Dr. Dan got to see J playing, being happy in someplace that wasn't an office visit.  J was just very verbal and just had lot to stay about everything.  We did X-rays and Dr. Dan feels that the upper spine is more than likely fused itself, the lumbar curvature looks to have progressed a bit but that could be the way he was sitting.  This also doesn't mean that it won't progress or that we won't be discussing spinal fusion and the risk that will go with it.  We got our story recorded for the upcoming radio-thon picked up our brace and headed home.    The plan is Dr. Dan will check him again in 6 months, he wants to see how J does have the botox injections the middle of February.  

Mr. funny boy everytime we would stop would try to unbuckle his seat belt and say, "I need out", it was so cute and cracked me up.   

J with Mike... We love him

Elizabeth brave letting J have her Iphone

J with Elizabeth and Steph

J with Steph

Mr. big radio man

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