Our next stage...

“We walk by faith, not by sight.” 2 Corinthians 5:7

I’ve been asked what is our next stage, will Dr. Dan wait until Jeremy is walking, what is he waiting on?   The next stage is the same as what was put in motion almost a year ago and still our ultimate goal for Jeremy, he requires a spinal fusion to stop the progression of scoliosis and this will be with or without any correction. I no longer put limits or in my mind create a time frame or plan, why?  I live in Jeremy World and he continues to write his own book and I choose to walk by faith not by sight and trust God in his wisdom, not my own understanding which is always much better. I’m not saying I breeze through this and remember telling nurses back in August and then again in January/February, twice this will be our last stay and only surgery here.  When we went back to see Dr. Dan for our 6 week post-op follow-up, Holly paged our favorite resident, Dr. Robertson and he stopped by for a pleasant visit, we were discussing Jeremy and he asked me, “What are your thoughts on when you would like to do the next surgery?” OK, ask me I have a million answers, last August worked really well for me, get it over with before school is out, do it over summer so he can start Middle school with this behind him but finally GOD sent us here for Dr. Dan's expertise and he is the expert.  We are here to follow his plan, he's proven himself to have J's best interest in his heart and I trust him. 

I sent Dr. Dan an email last week with a picture and progress of Jeremy then got brave and asked the million dollar question, do you have any idea of what the future plans are for Jeremy’s spinal fusion? His reply, “I am not going to plan for the next stage of his surgery until I see you guys back in July. He continues to improve when I thought we had hit a plateau. I really don’t want to slow down his progress.” I know he doesn’t want to hinder the progress Jeremy is making and answer good enough for me because I was really thinking when we came back in July he was going to already have a date set.   

J finished up his first week of summer vacation and I know he was ready for the break.  I have to admit I am loving it, it has been a long year of rushing from place to place and I get tired of always running and rushing.  I am also going to get spoiled this summer with having so much great help for Jeremy, I get to sleep in, get myself up, get ready for work and leave.  J is sleeping in later, plays around the house with his toys.  He works hard for therapy, has started to ambulate his gait trainer approx 10-15 ft, we got his walker which he just stands there at this time.  He is starting to pull to stand more often, his trunk control is getting so strong, he is starting to climb onto things, move himself around a chair better. 

I had a late night training session in Miami, OK so when I got home at 10pm I was ready for bed.  J was still up with the HTS doesn't surprise me.  I hear him in the fridge while I am taking off my makeup and getting ready for bed.  I'm greeted in the hall with J bringing me an ice-cream sandwich and he says, "yummy", this surprises me because I bought them for my nephews when they stayed with us and J has not really liked them.  I gave him a bite which he really didn't want so I put it back in the freezer, quick glance and thought wow maybe he does like them more than I think, he's down to 1.  This is Jeremy world, so should I be surprised this morning when I went to grab a peach out of the fruit bin to find that he tested the theory of does ice-cream really melt if it's put in the fridge? or mom needs to clean out this bin before going to work? 

J was helping me do dishes, I come back into the kitchen and this was the sight, he was motivated and pulled himself up to stand...

“I will lead them in paths that they have not known: I will make darkness light before them, and crooked things straight.” Isaiah 42:16.