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Monday, November 24, 2008

No I don't want to go home.....

Saturday I had an Oklahoma Family Network staff meeting from 9:40am to 4pm. I had asked my sister to keep Jeremy because my mom had kept him the days I was in Utah so I didn't want to abuse that privilege but I have a friend who I met through my work with OFN and the Children's Hospital and she told me last summer if I ever needed a babysitter they would love to keep Jeremy. I asked her and she was so willing, plus Jeff and Lori have 5 children and 2 are younger so I knew Jeremy would have a blast and a blast he had. When I went to pick him up and the door was open he was at the door with everyone had a big ball in his hand and was shaking his head no and saying, "NO", that can make a mom feel good. Jeremy spent the day playing with the children and Jeff and Lori. He whined most the way home until he fell asleep.

Friday, November 21, 2008

Stop

Jeremy will surprise me so many times, he is so funny. The other night Jeremy told me "topp". He just continues to jabber jaw away, there will come a day he will start talking and with the two of us no one will get a word in.

Monday, November 17, 2008

To GOD be the glory !!!!!!!

Early Thursday, Nov 6 we lost a precious person in our lives, Grandpa Roberts, he had battled colon cancer for almost 9 months, I plan in the upcoming weeks put some pictures of him and Jeremy on his blog. Grandpa Roberts LOVED Jeremy with all his heart, they had a really special relationship as me and him did and I'm grateful for that in our lives and I will miss him deeply.

That is one of my favorite hymns to sing, To GOD be the glory great things he has done, so loved he the world that he gave us his son. I was blessed this past week with an opportunity to go back to Salt Lake City, UT for a conference on sibshops. I love Utah it's a beautiful site. I loved the drive from the airport, the walk to the restaurant, looking out my motel window, the conference there were mountains everywhere. I really learned lot about what siblings of children with special needs deal with, they deal with lot of the same thing that parents of children with special needs. It breaks my heart, but grateful that we were able to start sibshops here in Tulsa on a monthly basis. I was glad to get back in Oklahoma especially after we landed in Denver, CO and it was 28 degrees and I could see my breath while waiting on my luggage. I landed back in Tulsa at 11:59pm. Jeremy was sleeping when I got home but I made enough noise he woke up and came into the bedroom. When we got up the next morning he seemed excited to see me but looked right past me to get my mobile phone. Jeremy made it clear to me he was ready to eat, so we came into the kitchen, he climbed upon the cabinet by the toaster and was sitting there playing with my phone and I got really close and kissed his little cheek and said, "Whatcha doing?" and he looks at me while playing with my phone and says, "Nuttin". Yes, Utah was so beautiful but I am a born OKIE and tend to talk that way. Thank GOD for mommies who love their daughters and even when we have children of our own and in our 40's she came and took care of Jeremy, kept my house clean and did some of my laundry. Thank you GOD for little boy's who miss their mommies when they are gone. Thank you GOD for all the beautiful, wondrous world that you created. Thank you GOD for sending your son Jesus and that you deemed me important enough to save me from my sins.

Tuesday, November 4, 2008

JEREMY SAYS SNACK....

Jeremy was doing speech therapy with Ms. Stacie and he loves the baby doll she brings, she uses pictures and signs to get him to request what he wants. Jeremy was snooping in the bag because he likes the dishes she brings and likes to feed the baby. We were sitting there and he says, "ack" I looked at her and said he said, "snack" and she agreed, I gave him his trail mix and he took a handful, tried to feed the baby and when she wouldn't take it he instantly took it for himself. Jeremy also signed the word, "eat" only after Stacie doing it one time yesterday, and he's not done that in a loooonnnnggg time.

Monday, November 3, 2008

Our Fall Festivities.....

On Friday, October 24 we had our Oklahoma family Network reunion at the Orr Family Farm in Moore, OK. I didn't want to take Jeremy by myself so I bought tickets for my mother, sister and niece to go with me. I was excited and knew that Jeremy would LOVE being in the outdoors and free to roam, pet animals and play. I had gotten my directions off of Yahoo and they were way off, we were over an hour late. We got to eat hot dogs, they got to pet animals, ride a horse, milk a pretend cow. Here are a few pictures of our adventure. We stayed until 8:30, by then Jeremy decided he was hungry so we stopped to fill up the car, drove across the street to McDonald's and arrived at our house around midnight, it was funny Jeremy would not go to sleep on the way home but there was activity in the car but after we dropped Granny off he passed out before we got on the highway to come home. Here are some pictures of our adventure, Jeremy loved petting animals we couldn't get him to come out of the pen.





















That next night was his school carnival, I worked the concession stand and can't tell you how many chili dogs, Frito chili pies, pizzas and nachos that I served but it was fun and we raised money for the school.

Halloween I didn't get Jeremy a costume, I put him in his Incredible Hulk shirt and his teacher painted his face green, I was up at the Children's Hospital helping with the carnival and when I got home Jeremy was sitting on the couch with a toy in his hand passed out. I would say with that he was worn out with the fall festivities.

Sunday, October 19, 2008

Fall Break !!!!

The Friday before Jeremy and I went to spend the night with my parents who live in the same house that I started 1st grade in. They have about 3 acres of land and it's prime roaming territory for Jeremy. It is peaceful out there. We slept with the windows open and my dad has a flower garden with a fountain right outside the bedroom window so we got to hear that all night. My mom still hangs clothes out on the clothes line so all the sheets, blankets smell so fresh and I still love that feeling of spending the night at home. We got up that next morning and went to visit my mom's sisters and her grandson, Justin. The two boys had fun playing outside, Justin has a playhouse and they both looked like they had rooted in the dirt. Then we came home to 2 days of school and work and then off for 3 days for Fall break....

We slept in on Wednesday, got up I fixed Jeremy pancakes for breakfast and we went to get his flu shot (Jeremy wasn't happy) and then we went on to the Kaleidoscope Children's Museum where we spent over 3 hours. We met Matt Cobb our teacher through ETL and did some behavior therapy.

This is the big doll house and Jeremy loves this, this is where we spent most of our time.
















They had a dentist/physician office and Jeremy didn't care (can't imagine why). There was a reverse walker exactly like the one he use to have and that is what he wanted to play with...go figure that.















The sensory room, Jeremy would go in but normally came right back out of, I think it was the feeling the flashing lights gave him and it was harder for him to see (he had broke his glasses and they were being repaired so he didn't have them). I did manage to get some sort of picture of him and Matt.















Now for the pictures of the big build, this is the park they built in Sapulpa the children love it. Jeremy's school takes a field trip there each year and he loves to climb on everything and have the freedom. We met my sister and her daughter Miranda. I also found Jeremy's handprint, when they were building the park they got the schools to make prints of the children's hand and they lined the walls with them. It took me a while but I found Jeremy's, he did this when he was in Kindergarten almost 4 years ago.


Monday, October 13, 2008

Snack Please and that's Yummy

We have been working on getting a device that talks for Jeremy since last May, it's not an easy process. You have to send a video to show that Jeremy can use the device and can be used for medical purposes. His speech teacher programed the device with snack please, drink please and that's yummy. This was right after school and he was starving, he kept hitting the snack please button. I was tempting him with the drinkable cereal straws that were fruit loot flavored, he doesn't like them in milk but they make a good snack.



Then we got him to push the button to say, that's yummy. The device is also beneficial that it will help his speech come along as well. He's been very vocal.