Jeremy's ears....

I took Jeremy to see Dr. David Hall, our ENT to check his ears. Jeremy has been pulling on his ears so I was afraid that he might be getting fluid build up. Jeremy has extremely small ear canals so he got his first set of tubes when he was 9 months old, we've had adenoids & tonsils removed and about 5 sets of tubes. The last set of tubes were T-tubes and they are suppose to last longer and normally have to be surgically removed and that was almost 3 years ago. We are assuming that the tubes are out of his ears, but the GREAT news is his ears look GREAT there is no sign of fluid build-up so Dr. Hall said this may be a sign that he is outgrowing the need for tubes. He thinks that the pulling on the ears might be due to he's got some wax and the tube looks to be laying right along the ear drum so he said that might be itching him. I'm going to use debrox in his ears twice a week to see if it will loosen the wax up and hopefully come out of his ear. Dr. Hall hates to clean out Jeremy's ears because he is so active and he's afraid he will accidentally puncture his ear drum. If Jeremy has a procedure where he has to be out I will coordinate with Dr. Hall to come over and clean his ears out really good and check out his ears, that is the way we normally do things.

Jeremy continues to be vocal and amazing me. Last night I had to meet his SLP to pick up an item and I told him he had to stay in the car and it sounded just like he said, "I get out". He also does this occasional growl, like Tim the tool man taylor does and it cracks me up. He had seen this SLP in 3 years and when she open the door to tell him "hi" he did his little crinkle up, cheesy shy smile which is flirting.

Thanksgiving Holiday !!!!!

I went up Thursday to the Children's hospital to help them serve dinner to the families who had to be there over the holiday. I can relate to being in the hospital during a holiday and the emotions that go with it. I always love meeting new families and getting to minister to the ones I've met in the past. Jeremy had a good holiday, we stayed home until Saturday when my mom had our family dinner. Jeremy was so tired when we got home and you would think he would crash but it works just the opposite with him and he didn't sleep hardly any. I was fixing my homemade noodles on Friday evening, Jeremy was up on the cabinet helping me I turned my back for just a split second and he had poured the whole can of baking powder into my boiling chicken. I can't complain he's trying so hard to help and wants to cook and help. When we got out to my mom's Saturday she told Jeremy to go put the milk in the ice box and he did it.

Jeremy has an appointment on Wednesday with Dr. Hall our ENT, he's been pulling on his ears and we know from our appointment in March that one of his T-tubes is out. He's not had any infection and has not been sick but we need to address this, we don't want him to get built up fluid. He's not been as verbal but that comes and goes, but he's been doing this high pitch squeal of AAAA and it sends chills up and down my spine. We go next week to our pediatrician to look at our medicines. Jeremy has not been wanting to focus at school and at home he's been a bear, aggressive, impulsive and not wanting to listen pretty defiant.

No I don't want to go home.....

Saturday I had an Oklahoma Family Network staff meeting from 9:40am to 4pm. I had asked my sister to keep Jeremy because my mom had kept him the days I was in Utah so I didn't want to abuse that privilege but I have a friend who I met through my work with OFN and the Children's Hospital and she told me last summer if I ever needed a babysitter they would love to keep Jeremy. I asked her and she was so willing, plus Jeff and Lori have 5 children and 2 are younger so I knew Jeremy would have a blast and a blast he had. When I went to pick him up and the door was open he was at the door with everyone had a big ball in his hand and was shaking his head no and saying, "NO", that can make a mom feel good. Jeremy spent the day playing with the children and Jeff and Lori. He whined most the way home until he fell asleep.

Stop

Jeremy will surprise me so many times, he is so funny. The other night Jeremy told me "topp". He just continues to jabber jaw away, there will come a day he will start talking and with the two of us no one will get a word in.

To GOD be the glory !!!!!!!

Early Thursday, Nov 6 we lost a precious person in our lives, Grandpa Roberts, he had battled colon cancer for almost 9 months, I plan in the upcoming weeks put some pictures of him and Jeremy on his blog. Grandpa Roberts LOVED Jeremy with all his heart, they had a really special relationship as me and him did and I'm grateful for that in our lives and I will miss him deeply.

That is one of my favorite hymns to sing, To GOD be the glory great things he has done, so loved he the world that he gave us his son. I was blessed this past week with an opportunity to go back to Salt Lake City, UT for a conference on sibshops. I love Utah it's a beautiful site. I loved the drive from the airport, the walk to the restaurant, looking out my motel window, the conference there were mountains everywhere. I really learned lot about what siblings of children with special needs deal with, they deal with lot of the same thing that parents of children with special needs. It breaks my heart, but grateful that we were able to start sibshops here in Tulsa on a monthly basis. I was glad to get back in Oklahoma especially after we landed in Denver, CO and it was 28 degrees and I could see my breath while waiting on my luggage. I landed back in Tulsa at 11:59pm. Jeremy was sleeping when I got home but I made enough noise he woke up and came into the bedroom. When we got up the next morning he seemed excited to see me but looked right past me to get my mobile phone. Jeremy made it clear to me he was ready to eat, so we came into the kitchen, he climbed upon the cabinet by the toaster and was sitting there playing with my phone and I got really close and kissed his little cheek and said, "Whatcha doing?" and he looks at me while playing with my phone and says, "Nuttin". Yes, Utah was so beautiful but I am a born OKIE and tend to talk that way. Thank GOD for mommies who love their daughters and even when we have children of our own and in our 40's she came and took care of Jeremy, kept my house clean and did some of my laundry. Thank you GOD for little boy's who miss their mommies when they are gone. Thank you GOD for all the beautiful, wondrous world that you created. Thank you GOD for sending your son Jesus and that you deemed me important enough to save me from my sins.

JEREMY SAYS SNACK....

Jeremy was doing speech therapy with Ms. Stacie and he loves the baby doll she brings, she uses pictures and signs to get him to request what he wants. Jeremy was snooping in the bag because he likes the dishes she brings and likes to feed the baby. We were sitting there and he says, "ack" I looked at her and said he said, "snack" and she agreed, I gave him his trail mix and he took a handful, tried to feed the baby and when she wouldn't take it he instantly took it for himself. Jeremy also signed the word, "eat" only after Stacie doing it one time yesterday, and he's not done that in a loooonnnnggg time.

Our Fall Festivities.....

On Friday, October 24 we had our Oklahoma family Network reunion at the Orr Family Farm in Moore, OK. I didn't want to take Jeremy by myself so I bought tickets for my mother, sister and niece to go with me. I was excited and knew that Jeremy would LOVE being in the outdoors and free to roam, pet animals and play. I had gotten my directions off of Yahoo and they were way off, we were over an hour late. We got to eat hot dogs, they got to pet animals, ride a horse, milk a pretend cow. Here are a few pictures of our adventure. We stayed until 8:30, by then Jeremy decided he was hungry so we stopped to fill up the car, drove across the street to McDonald's and arrived at our house around midnight, it was funny Jeremy would not go to sleep on the way home but there was activity in the car but after we dropped Granny off he passed out before we got on the highway to come home. Here are some pictures of our adventure, Jeremy loved petting animals we couldn't get him to come out of the pen.





















That next night was his school carnival, I worked the concession stand and can't tell you how many chili dogs, Frito chili pies, pizzas and nachos that I served but it was fun and we raised money for the school.

Halloween I didn't get Jeremy a costume, I put him in his Incredible Hulk shirt and his teacher painted his face green, I was up at the Children's Hospital helping with the carnival and when I got home Jeremy was sitting on the couch with a toy in his hand passed out. I would say with that he was worn out with the fall festivities.