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Friday, January 9, 2009

Scoliosis check

We went yesterday for our yearly check with Dr. Anagnost although it turned out to be a little over a year. Dr. A said that it looked like the upper curve had progressed but the lower curve looked better, he said overall since he has been seeing Jeremy it has progressed some but we are getting to the point that we may have to address this issue. I admitted I was a BAD MOM and didn't make Jeremy wear the brace over the summer and then of all things he broke his leg the first of August so during the process there was an additional 3 months. Dr. A has told me all along that he wasn't sure if and when the spine had to be fixed if he would be the one to do it, Jeremy is complicated and he said you need a place that does this frequently. He wouldn't fuse Jeremy's spine because once you do that they don't grow, and a growing rod has it's own set of complications. He said if I went to another Orthopedic surgeon they would probably freak out and say it needs to be fixed ASAP but he's had the benefit of knowing Jeremy for the past 6 years and it's not causing him breathing or mobility problems. He said we would probably want to check out Minneapolis, MN or Lewisville, KY he did his residency at one place and he said they had a big spine center there, as well as Shriner's. We go back in 6 months instead of a year. It is also difficult to say the least to get a good X-ray of Jeremy so I asked about doing an MRI since we have to put Jeremy out. Our NSG suggested that we do a brain MRI periodically and we've not done one for almost 5 years so this would be a good opportunity to do both at one time. Pray for Jeremy's spine, me and our medical team.

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