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Thursday, August 12, 2010

New Plan

Thank you for the prayers. Jeremy is sleeping really good so we are letting him, the PT is coming up later to get him up and about. Mike came up to measure him for his new brace, it will be different than the original one we were measured for at our Pre-op appointment. If he continues to do good he will go down to a pediatric nose canala, he is on room oxygen and a lower flow. We will continue the 7 day antibiotic just to make sure no infection sets in, he started that on Sunday. They will continue breathing treatments every 8 hours. The chest X-ray is about the same, but the intenvist says clinical wise he is doing great. They sedated him and Dr. Dan and Dr. Robertson removed the halo, it was a bitter sweet moment for me because it means the plans of change. We are hoping that with the halo off he will rest better, hold his head up more and maybe that will help him to realize the difference and move on neurologically. He will continue to watch him and see if motor function returns.

The new plan is we go home with a brace that will hold Jeremy upright and come back see Dr. Dan in 6 weeks. Dr. Dan will then look at how he is doing and see where we go from there. I did ask if there was a possibility that he might put J in the hospital a week before spine surgery in traction before the spinal fusion which is a possibility. Jeremy will wear the brace 24/7 and Mike will bring it up tomorrow. Dr. Dan wants PT to get Jeremy up this afternoon and then to start getting him up in the chair with his brace tomorrow. Dr. Dan is going to communicate with Dr. Cyrus on the PT to make sure we have someone that is watching Jeremy with his motor and to work with him. I told him if it would be better if we sought a therapy place or had one come to the home like Barb and Stacy does and he said that would be fine, whatever works best for us. When Jeremy goes home he will have no restrictions other than wear the brace it will prevent him from doing anything he should not be doing.

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